"Nothing to Lose": Patients Fight to Be Heard
Today we have two powerful stories. Each one is as different as the disease that it’s about. Yet there is a common thread: patients want and need to be heard. You will hear from a mom who will do whatever it takes to save her son’s life. And you will learn about a young woman who is fighting for herself and her underserved patient community. Guests: Amber Freed, SLC6A1 Connect Melodie Blackwell, COCCI
I AM BIO · Amber Freed, Melodie Blackwell
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Show Notes
Today we have two powerful stories. Each one is as different as the disease that it’s about. Yet there is a common thread: patients want and need to be heard. You will hear from a mom who will do whatever it takes to save her son’s life. And you will learn about a young woman who is fighting for herself and her underserved patient community.
Guests:
Amber Freed, SLC6A1 Connect
Melodie Blackwell, COCCI