Hodgkin Lymphoma CancerCare Connect Education Workshops

- Overview of Cancer Survivorship - Managing Post Treatment Side Effects/Late Effects - Quality-of-Life Concerns - Fear of Recurrence - Survivors’ Guilt - Finding Your New Normal - The Importance of Treatment Summaries & Encounter Notes - Follow-Up with Your Oncologist & Primary Care Doctor, Including Discussion of Health Screening & Concerns - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts

- Overview of the Unique Challenges for Veterans Living with Cancer - Your Veteran’s Identity - Veterans Coping with Cancer - Co-Morbidities Impact on Veterans - Overview & Definition of Fatigue - Evaluation & Treatment of Fatigue - Post-Traumatic Stress, Pain Management & Survivorship - Adherence to Treatment Plans: Taking Your Treatment on Schedule - Nutrition & Hydration Concerns & Tips - Tips to Overcome Barriers in Coordinating Care in Different Health Care Settings - Veterans’ Health Administration (VHA) Medical Centers & Non VHA Hospitals - Stresses on Caregivers in Coordinating Care - Long Distance Caregivers - Self-Care Tips for Veterans Living with Cancer & Their Loved Ones - Helpful Hints in Communicating with Your Health Care Team & Health Care Providers - Finding & Using Practical Resources, Including Veteran Specific Resources - Questions for Our Panel of Experts

- Overview of Cancer Treatments - Definition of Adherence: Taking Your Pills on Schedule - Its Important Role in Managing Cancer - Barriers to Taking Your Pills - Practical Tips to Overcome These Barriers, Including Family, Partners & Others - Computer, Tablet & Phone Reminders Including Emails, Texts & Apps - Planning Ahead: Lead Time in Refilling Prescriptions, Weekends, Travel & Holidays - Communicating with Your Health Care Team about Adherence with Reminders from Your Pharmacy & Pharmacist - Clinical Trials on Adherence - The Increasing Role of Telehealth/Telemedicine Appointments - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions, Follow-Up Care & Discussion of OpenNotes - Questions for Our Panel of Experts

- Overview of Blood Cancers - New Research Presented at ASH - Disease-Specific Treatment Updates from ASH on Leukemia, Lymphoma, Multiple Myeloma, & Myeloproliferative Neoplasms (MPN) - The Role of Precision Medicine & Clinical Trials - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Key Questions to Ask Your Health Care Team about Quality-of-Life Concerns - Questions for Our Panel of Expert Speakers

- Overview of Cancer & the LGBTQI+ Community, Including HIV & HPV - The LGBTQI+ Community’s Disproportionate Cancer Burden - Addressing the LGBTQI+ Health Disparities Gap, Including Mistrust of Health Care Providers - Barriers to Health Care Access, Including Discrimination - Health Care, Cancer Screening, Palliative & Supportive Care, Affordable Housing, Gay Men & Lesbian Cancer Issues - Transgender/Gender-Nonconforming People’s Cancer Concerns - Challenges for LGBTQI+ Caregivers - Social Security Disability Benefits for LGBTQI+ People Living with Cancer - Military Service & the LGBTQI+ Community - Practical, Financial, Emotional & Social Concerns - Cancer Resources for the LGBTQI+ Community - Questions to Ask Our Panel of Experts

- Definition of a Caregiver - What Research Tells Us About Children as Caregivers’ Well Being - Children as Caregivers - Children as Caregivers for a Sibling - Children as Caregivers for a Parent - Children as Caregivers for a Grandparent - Children as Caregivers for an Older Adult - Children as Caregivers for a Younger Adult - Children as Caregivers for Cancer Survivors - Children as Caregivers for a Friend - Care Coordination as a Child Caregiver - Coping with Holidays, Birthdays & Special Occasions - Managing Family, Friends & Traditions - The Important Role of Long-Distance Children as Caregivers - Practical Tips for Managing Children’s Caregivers’ Stress - How to Provide Support for Children as Caregivers - The Long Term Effects of Children as Caregivers - Questions for Our Panel of Experts

- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects, & Pain Management - What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care - What to Consider When Selecting a Cancer Care Team & Treatment Facility - Languages Spoken & Diversity of the Health Care Team - What Is Cultural Humility & How Your Care Team Practices Cultural Humility - When to Seek a Second Opinion: Finding the Best Care - How to Request Copies of Treatment & Pathology Reports - Your Encounter Notes - Key Questions to Ask Your Health Care Team About Your Treatment Plan - How to Self-Advocate with Health Care Staff: Languages Spoken, Disability Services & Other Barriers to Health Equity - Health Literacy: How to Become More Knowledgeable & Satisfied with Your Care - Your Important Role in Shared Decision-Making - Tips to Communicate with Your Health Care Team to Determine if They are the Best Team for You - Guidelines to Improve Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts

- Understanding the Future of Cancer Research & Clinical Trials - Increased Focus on Earlier Detection & Treatment of Cancer - Health Care Disparities Research - Enhanced Knowledge of the Molecular Portrait of Cancer - Artificial Intelligence (AI) Driven Approaches for Diagnosis & Treatment of Cancer - Microsatellite Instability (MSI): Mutations in DNA Mismatch Repair Genes – Implications for Treatment - Immunotherapy - CAR T-Cell Therapy - Immune Checkpoint Inhibitors & Blockade - Monoclonal Antibodies - Cancer Treatment Vaccines - Immune System Modulators - Targeted Immunotherapies - Radiopharmaceutical Therapy (RPT) - Antibody-Drug Conjugates (ADCs) - Robotic Surgery - Additional Focus on Lifestyle, Exercise, Nutrition & Hydration - Increasing Role of Telehealth/Telemedicine Appointments - Questions for Our Panel of Experts

- Disproportionate Burden of Cancer & Infectious Diseases on People of Color - Social Determinants of Health, Including Languages Spoken, Health Literacy, Culture, Race, Gender Orientation, LGBTQI+, Religion, Access to Medical Care - Influence of the Local & Regional Environment in Which You Live - How Race May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects & Pain Management - Tips to Find Your Best Care Team - Access to Cancer Treatment in the LGBTQI+ Community - The Role of Housing, Cost of Cancer Treatment & Follow-Up Care on Your Health - Food & Pharmacy Deserts - Food Insecurity: Tips to Increase Your Access to Health Promoting Nutrition - Job Commitments, Access, Transportation to Treatment & More - How Telehealth May Help in Advancing Your Health Equity - Tips to Cope with Health Care Disparities: Valuing Your Identity - Guidelines to Communicate with Your Health Care Team - Questions for Our Panel of Experts

- The Meaning of Work - Talking with Your Health Care Team About Work - Managing Your Cancer Treatments While Working - Understanding Your Legal Protections in the Workplace, Including Americans with Disabilities Act (ADA) - Family Medical Leave Act (FMLA) & Intermittent FMLA - Equal Employment Opportunity Commission (EEOC) State & Local Laws - Disclosure & Communication with Human Resources, Supervisors & Co-Workers - Solutions to Address Workplace Challenges - COBRA – Continuation of Insurance Benefits If Employment Ends - Disability – Short Term, Long Term, Social Security Disability (SSD) & Supplemental Security Income (SSI) - Tips for Creating a Plan to Continue Working - The Importance of Self Advocacy - Questions for Our Panel of Expert

- Overview of the Medical & Indirect Costs of Treatment - What to Do When Cancer Treatment Seems Unaffordable – Self Advocacy - Talking with Your Health Care Team about Your Financial Concerns - The Benefits & Limitations of Your Health Plans, Insurance, Medicare & Medicaid Coverage - Tips on Appealing Your Insurance & Medicare Claims & Provider Denials - Living Wills, Health Care Proxies & Advance Health Care Directives - Accessing Financial, Co-Payment Assistance & Medicaid Programs - Support for the Underinsured & Uninsured, Including the Affordable Care Act (ACA) & Medicaid - Other Resources for Financial Help - Questions for Our Panel of Experts

- Overview of Common Eye & Vision Changes Related to Cancer Treatments - Discussion of Common Eye & Vision Changes, Including Causes & Risk Factors - Tips to Manage Dry Eyes, Watery Eyes, Itching Eyes, Blepharitis, Loss of Eyelashes, Changes in Vision, Cataracts, Floaters & Flashing Lights - The Role of the Multidisciplinary Team - Tips to Manage Low Vision & How Eye Products Can Help You Manage Eye/Vision Changes - Clinical Trials: How Research Increases Your Treatment Options - Communicating with Your Health Care Team - Guidelines for Eye Examinations & Check-Ups - Quality-of-Life Concerns - Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions, Follow-Up Appointments & Discussion of Open Notes - Questions for Our Panel of Expert

- Understanding Your Cancer Diagnosis & Treatment Options - Clinical Trial Opportunities: How Research Increases Treatment Options - Factors That May Affect Treatment Planning - How Your Health Care Team May Help You Address Your Care - Participating in Decisions about Your Treatment Plans, Side Effect Prevention & Management - Understanding the Role of Supportive Care - The Role of Self Advocacy in Your Oncology Care - Key Questions to Ask Your Health Care Team about Quality-of-Life Concerns - Preparing for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions, Follow-Up Care & Discussion of OpenNotes - Questions for Our Panel of Experts

- Overview of CAR T-Cell Therapies - Understanding CARs – Chimeric Antigen Receptors - When to Consider CAR T-Cell Therapies as a Treatment Choice - Clinical Trials for CAR T-Cell Therapies - Discussion of CAR T-Cell Therapies - Managing Potential Treatment Side Effects - Specific Examples of How CAR T-Cell Therapies Contribute to Oncology Care - Key Questions to Ask Your Health Care Team about CAR T-Cell Therapies - The Benefits of CAR T-Cell Therapies - Follow-Up Care: What to Expect - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology and List of Questions - Questions for Our Panel of Experts

- How to Cope While Waiting for Test Results from Cancer Work-Up - Managing Cancer When You Have Other Health Problems - The Impact of Chronic Illness on Cancer Treatment - The Importance of Adherence: Taking Your Treatment on Schedule - Reducing Harmful Drug Interactions - The Role of Clinical Trials: How Research Increases Your Treatment Options - Knowing When to Call Your Health Care Team Between Appointments - Key Questions to Ask Your Health Care Team - The Role of the Dietitian & Physical Therapist in Helping You Cope with Cancer - Quality-of-Life Concerns - Managing the Emotional, Social, Practical & Financial Issues of Coping with Cancer - Creating the Right Care Plan for You, Including Scheduling Appointments & Follow-Up Care - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts

- Overview of the Different Names for Biomarker Testing & Why They Can Be Helpful for Treatment - Tumor Marker Testing, Genomic Profiling, Genomic Sequencing, Molecular Profiling, Next Generation Sequencing - The Relationship Between Biomarker Testing & Precision Medicine - Types of Biomarker Tests for Cancer Treatment - Do I Need Biomarker Testing for My Cancer? - How is Biomarker Testing Done? Using Samples of Your Cancer & Your Healthy Cells - Samples are Sent to the Lab Where Pathologists Test for Certain Biomarkers - Some Results Might Lead to Genetic Testing – Inherited or Germline Mutations - Some Biomarker Testing is Done as Part of Clinical Trials for New Cancer Treatments - Other Uses of Biomarkers – Determining a Person’s Cancer Risk or Finding Cancer - Biomarkers Used to Show if a Treatment is Effective or May Show if Cancer is Returning - Biomarkers Play Such an Important Role in Choosing the Best Treatment for You & In Determining Your Progress - Questions for Our Panel of Experts

- Overview & Definition of Biomarkers - What are Some Examples of Biomarker Testing - How Biomarker Testing Provides Useful Information for Cancer Treatment - Why the Molecular Portrait of Cancer is so Important - The Role of the Pathologist - Benefits of Biomarker Testing & Precision Medicine - Predicting Response to Treatment - Clinical Trials: How Research Contributes to Your Treatment Options - Key Questions to Ask Your Health Care Team - Guidelines for Preparing for Telehealth Appointments with Your Health Care Team, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Quality-of-Life Concerns - Questions for Our Panel of Experts

- Overview of Clinical Trials & Why They are Important - Understanding Your Treatment Options, Including Clinical Trials - Concerns About Participating in Clinical Trials - Types of Clinical Trials - What Happens in a Clinical Trial? - The Meaning of Informed Consent - Benefits & Risks of Participation - How & Where Clinical Trials are Conducted - How to Participate in Clinical Trials - Specific Questions to Ask Your Health Care Team About Clinical Trial Participation - Guidelines for Preparing for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Accessing Resources for Clinical Trials - Questions for Our Panel of Experts

- Skin Toxicity - How Cancer Treatments Affect Your Skin - The Multidisciplinary Approach to Managing Skin Changes & Irritation - Practical Tips to Manage Rash, Dry/Itchy/Peeling Skin & Nail Changes - Sun Safety Tips During Cancer Treatments - When to Call Your Health Care Team about Skin Toxicity - The Role of Clinical Trials: How Research Increases Your Treatment Options - The Importance of Communicating with Your Health Care Team: Key Questions to Ask - Quality-of-Life Concerns - How to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts

- Overview of Blood Cancers - New Research Presented at ASH - Disease-Specific Treatment Updates from ASH on: Leukemia, Lymphoma, Multiple Myeloma & Myeloproliferative Neoplasms (MPNs) - The Role of Precision Medicine & Clinical Trials - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Key Questions to Ask Your Health Care Team About Quality-of-Life Concerns - Questions for Our Panel of Experts