Liam Rooney: father of child with cystic fibrosis celebrates Pharmac proposal to widen access
Heather du Plessis-Allan Drive · Newstalk ZB
Audio is streamed directly from the publisher (pdst.fm) as published in their RSS feed. Play Podcasts does not host this file. Rights-holders can request removal through the copyright & takedown page.
Show Notes
Families of young children with cystic fibrosis are celebrating a Pharmac proposal to widen access to the drug Trikafta, which is out for consultation.
It's been funded for children over 6 since 2023, but the agency's now proposing extending it to under-sixes.
Liam Rooney's child has cystic fibrosis and he says his family was looking for other ways to get it.
"I'd already spoken to my boss over in Australia about the potential for us to move over if things got worse."
LISTEN ABOVE
See omnystudio.com/listener for privacy information.