Sophia's Fight: Rare Childhood Dementia in Scotland
Glasgow News Today | 2 Min News | The Daily News Now! · The Daily News Now!
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Show Notes
Sophia Scott, diagnosed with Sanfilippo syndrome at four, faces an incurable, progressive genetic condition thats slowly destroying her brain. Despite her parents best efforts, including Darrens advocacy work, Scotlands support for childhood dementia families remains inadequate. Recent government funding for two childhood dementia officers is a start, but families like Sophias urgently need more comprehensive strategies and research.
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