
Diabetes Connections | Type 1 Diabetes
811 episodes — Page 12 of 17

Ep 261"The Truth About Insulin Prices" (Bonus Minisode)
bonusPatients for Affordable Drugs has released a new report all about insulin pricing. Stacey has a quick mini-episode to explain what's in the report and how you can influence change. Read the report here Learn about Stacey's new book! Join the Diabetes Connections Facebook Group! Sign up for our newsletter here ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 260Ask the D-Moms: Handling the Holidays With Type 1 Diabetes
This week…. Ask the D-Moms, talking about the holidays. Thanksgiving is just around the corner and it can be stressful, not just because of well meaning family but for many people who are facing their first thanksgiving with type 1: Find out more about Stacey's new book! Moira McCarthy and I will answer your questions about food, drinks and what to say to people who after a lot of time still may not get it. Join the Diabetes Connections Facebook Group! TMSG – a policy change means people with type 1 can become commercial pilots and a bit about world diabetes day. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. -Sign up for our newsletter here ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 259All About GVOKE, The New Stable Glucagon (Bonus Episode)
bonusRecently, the FDA approved the very first stable liquid glucagon, brand name GVOKE, and as it's showing up in pharmacies and becoming more available, we wanted to learn more about it. After all these years.. it's amazing how we suddenly have two new options on the market. The orange or red box glucagon most of us have held onto since diagnosis was approved back in 1961! Check out Stacey's book: The World's Worst Diabetes Mom This is the second FDA approval for a next-gen improved glucagon, in 2019, following the recent FDA Approval of Lilly's nasal glucagon, Baqsimi. The company that makes Gvoke is called Xeris. Stacey talks to CEO Paul Edick and senior VP Ken Johnson. Join the Diabetes Connections Facebook Group! Gvoke info: Main website from Xeris Savings & Support from Xeris Disclosure: Stacey has received compensation and travel reimbursement as an adviser to Xeris at previous events. No compensation was asked for or provided for this interview (or any Diabetes Connections interview). Sign up for our newsletter here Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 258Serving in the Military With Type 1 Diabetes - Meet Mark Thompson
With Veteran's Day later this month.. we're talking about T1D in the military. Yes, you can serve with type 1 diabetes, but there's a catch. You have to be diagnosed while you're already enlisted. That's what happened to Sergeant Major Mark Thompson. Buy Stacey's new book, "The World's Worst Diabetes Mom" Mark shares his story and has advice for young people with diabetes who want to enlist and find that they aren't allowed. Join the Diabetes Connections Facebook Group! In Tell Me Something Good, a study at Ft Bragg that is changing the military's perception of type 1 diabetes.. and how a canoe trip through the Canadian wilderness changed one family's perception of life with diabetes. Sign up for our newsletter here This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. More info about diabetes in the military Learn about Caroline Marshall: FBI Special Agent with T1D Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 257The Diabetic Therapist: Full Interview On T1D & Mental Health (Bonus Episode)
bonusThis week, a deep dive into mental health and diabetes. We talk about burnout, depression and feeling like a burden to others. Allison Nimlos was diagnosed with type 1 at age 8. She is a licensed therapist – in fact her social media handle is The Diabetic Therapist and she's a CDE in training. The World's Worst Diabetes Mom is out! Buy Stacey's Book! Allison talks about the mental toll diabetes can take – something she knows about first hand. This is one of our Extra interviews.. so there will be a longer bonus episode. and it will be available as a transcript. Join the Diabetes Connections Facebook Group! In Tell Me Something Good, a message about affordable insulin gets a World Series audience, thanks to a familiar name around here. (watch the video) Sign up for our newsletter here This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 256The Diabetic Therapist: T1D and Mental Health
This week, a deep dive into mental health and diabetes. We talk about burnout, depression and feeling like a burden to others. Allison Nimlos was diagnosed with type 1 at age 8. She is a licensed therapist – in fact her social media handle is The Diabetic Therapist and she's a CDE in training. The World's Worst Diabetes Mom is out! Buy Stacey's Book! Allison talks about the mental toll diabetes can take – something she knows about first hand. This is one of our Extra interviews.. so there will be a longer bonus episode. and it will be available as a transcript. Join the Diabetes Connections Facebook Group! In Tell Me Something Good, a message about affordable insulin gets a World Series audience, thanks to a familiar name around here. (watch the video) Sign up for our newsletter here This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. It's Halloween Week! Listen to our "Ask The D-Moms" episode all about trick or treating, costumes and candy Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 255Pushing for Diversity & Representation Within the Diabetes Community: Anita Nicole Brown
This week.. a frank discussion about the type 1 diabetes community and inclusion. About race and diversity. Actress and model Anita Nicole Brown says people of color are being left behind Buy Stacey's Book: "The World's Worst Diabetes Mom" We talk about how to get more voices in the community.. and better representation at conferences and in leadership. We also talk about working on sets and getting booked for acting jobs with type 1. Join the Diabetes Connections Facebook Group! In Tell Me Something Good.. a bunch of ride and walk milestones to share. One of our TMSG mentions is Dennis who's been on the show before. We talked about turning 65 with type 1 - Medicare and more. Sign up for our newsletter here This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. ----- ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 254JDRF & Beyond Type 1 CEOs Explain Their New Alliance (Bonus Episode)
bonusWhat happens when two huge diabetes organizations decide to work together? We're all about to find out. Stacey talks to the CEOs of JDRF & Beyond Type 1 about their newly announced "alliance." Buy Stacey's Book - "The World's Worst Diabetes Mom" JDRF's Aaron Kowalski and Beyond Type 1's Thom Scher join Stacey for a talk about why these groups came together and what that means for the diabetes community. Join the Diabetes Connections Facebook Group! More info about the announcement here Sign up for our newsletter here ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android ----------- Partial transcript of the episode: Stacey: Can you talk a little bit about the story behind [the alliance]? Thom: I think that both JDRF and Beyond Type 1 are strong and important in this space. Aaron and I sat down and it was very clear that there were areas of overlap in the middle of the Venn diagram of sorts where we realized that working together, and this sounds a little cheesy, but where it really would be 1+1=3… And the minute we identified that list of things, it just became very clear that we were stronger together on a handful of these initiatives. I also think, and this certainly isn't something that our organizations were trying to do, but inevitably I think that we, people in the community sometimes feel like they had to pick, and that's silly. We're all in this together. We're all fighting to improve the lives of people impacted by diabetes. I think JDRF and Beyond Type 1 saw that and saw that we were able to really work together and build something robust and official that allows both organizations to now go out and do these things together. Is this a merger? You've talked about eliminating some redundancies – can you speak to that? Aaron: We're going to stay independent organizations, but it is reducing redundancies and building on what one another do well. From my perspective, when I took on the CEO role of JDRF, I talked to the board about a couple of key things. One is: what is JDRF really good at? I think we're really good at funding research. We fund more research than anybody but the U.S. government. We've been successful at advocacy, and our mission has really been improving lives and curing Type 1 diabetes. Beyond Type 1 has been an incredible force in uniting our community… Beyond Type 1 has engaged with the adult community certainly better than we have. What is the latest from JDRF in terms of pushing for insulin affordability? Aaron: This is one of our top advocacy issues that we're dealing with now. I've said this multiple times, I've testified on the Hill three times on this topic. No one should suffer or die for lack of insulin. And what we have in the United States is a shameful situation. JDRF is fully committed that nobody should have to choose between rent or a car payment or insulin. So we've been working on a number of fronts with the payer community, with Congress, looking at people who are under or uninsured, and looking at every remedy possible. I can tell you that working with Beyond Type 1, I think we're going to be a be able to amplify this message. To me, it's of course about amplifying the message, but it's about driving towards solutions. Thom: I'll build off of that. I think we certainly are looking forward to working with JDRF to be more impactful in this arena of bringing more patient voices into the conversation, certainly at a federal level. I think our perspective at Beyond Type 1 on this is that we need to look for a pragmatic solution. And on top of those pragmatic solutions, we need to be ensuring that we are providing resources every day to people who are in need of insulin. And so some of those pragmatics take the form of actual policy matters be it first dollar coverage or Kevin's Law. Some of the resource components have to do with ensuring that, for example, people who are uninsured know what assistance programs are available to them, they know how to get to them, they know that with them they will have coverage. There are robust programs in particular for that population. It's that the barriers to entry are too high. So we're really committed to building out our advocacy forum of Beyond Type 1 over the course of the next year. This alliance was a big part of that because we now get to work with JDRF, a leading organization on that front, leveraging their expertise and bringing it into our community, and that's a stepping stone for us to take more meaningful steps. Did you know each other before you started talking about this? Thom: I consider Aaron a friend, and a colleague, and I love working with him. I don't think Aaron and I knew each other all that well when we each respectively took over as CEOs, though I certainly knew of Aaron and respected Aaron. I think Aaron and I over series of c

Ep 253"Everyone is an Athlete" - Erik Douds Talks T1D, Motivation & Extreme Sports
Erik Douds has big plans for the next few weeks. First, a 100 mile bike ride through Death Valley next week and then the New York City Marathon. Douds says these events take on a new - unexpected layer when you have type 1: it becomes about community. Buy the Book! The World's Worst Diabetes Mom is on sale now! Erik is partnering with Scott Johnson on the JDRF Death Valley Ride, we'll talk about how the popular community leader got involved. Donate to Erik & Scott's JDRF Ride Plus.. tell me something good! Scholarships and new blogs! Join the Diabetes Connections Facebook Group! This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. Sign up for our newsletter here 00:00 Show Open: What's on this week 1:20 Stacey Welcome: Stacey is recording on the road from a women's podcasting conference. She talks about Benny's recent injury he's okay - they thought it might be an ACL tear, but it's just a bad knee strain - and what happened with blood sugar. Book update as well! Pre-orders have gone out! 6:20 Snippet of Scott Johnson ride video 8:20 Interview with Erik Douds 41:30 Tell Me Something Good: college scholarships for people with diabetes? College Diabetes Network list Beyond Type 1 List Check out DiabetesMine monthly blog/social media roundups 45:30 Stacey's on the road! Look at her schedule and request that she come to your event here. ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 252Ask the D-Moms: Managing Halloween With Type 1 Diabetes
Halloween doesn't have to be scary for children with type 1 diabetes or their parents. Moira McCarthy & Stacey are back with Ask the DMoms. They answer your questions about all those bags of candy, lows while kids run around the neighborhood, pumps and d-tech under costumes and much more. Order Stacey's new book - The World's Worst Diabetes Mom In Tell Me Something Good: A good beat and a follow-up that lets us say yes to the question.. is there a doctor in the house? Join the Diabetes Connections Facebook Group! Listen to our previous episode with Kelly Kunik dignosed as a child on Halloween. Sign up for our newsletter here 00:00 Show Open: What's on this week? 1:40 Stacey welcome: Thanks to Friends for Life Falls Church! The World's Worst Diabetes Mom is available for pre-orders! It will be on Amazon Nov 3 5:20 Ask The D-Moms: Halloween 35:30 Tell Me Something Good: Blindfolded Drummer & Dr. Heather Walker 38:30 Where's Stacey Going Next? Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 251Jeffrey Dachis & One Drop: More Than A Meter Company
One Drop made a name for itself with a beautiful design; this summer it became the only diabetes devices in Apple stores. But founder Jeff Dachis says that the mission goes far beyond looking good. Join the Diabetes Connections Facebook Group! Jeff explains all that One Drop does and shares his frightening diagnosis story. We also talk about his past as an early internet innovator. Order Stacey's Book - The World's Worst Diabetes Mom: Real Life Stories of Parenting a Child with Type 1 Diabetes ----- 00:00 What's on this week? Stacey welcome: Stacey mentions that two episodes ago she profiled Carson Wedding and said that she was the first person to use the DIY Omnipod Loop. As it's hard to determine exactly who's "first" in the DIY crowd (and not really necessary), Stacey corrects that assertion. Interview with Jeff Dachis Tell Me Something Good Stacey shares a story about watching Law & Order with Benny - the episode was an awful one about using insulin in a very weird way. Sign up for our newsletter here ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 250"Evidence-Based Hope" and Type 1 Diabetes: New Info, New Optimism
Is the news about diabetes better than many of us believe? A deeper look into some important studies with two leaders in the diabetes community. Join the Diabetes Connections Facebook Group! Dr. Bill Polonski of the Behavioral Diabetes Institute and Dr. Steve Edelman, founder of TCOYD and an endocrinologist who lives with type 1, join Stacey to talk about how to go through the evidence that's sort of hiding in plain sight.. to live well with diabetes. Sign up for our newsletter here Tell me something good: a young woman's letter to a major clothing company sparks a change – it's all about the pockets. Thanks to Athleta for a new product! This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. More about the DCCT Trial More about the EDIC Trial ----- 00:00 Show open: what's on this week? 1:15 Stacey welcome: 250 shows! Check out our search page and browse by subject or keyword 5:00 Interview with Drs. Polonsky & Edelman 48:30 TMSG: new sweatshirt from Athleta inspired by a teen with type 1 52:00 You can still pre-order Stacey's book. Available everywhere in just a few weeks! ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 249She Is Not Waiting: Carson & DIY Omnipod Loop: / Baseball GM Dave Peterson
Would you ask your teenage daughter to be the first to try a new DIY diabetes method? Carson's family did. She's been Looping with Omnipod since last fall; as far as we know, she's the first person to do so. Pre-order the World's Worst Diabetes Mom, Stacey's New Book! We'll talk about being a loop guinea pig, how her parents are doing and more. In our Community Connection this week, Stacey talks to Dave Peterson, the GM of the Worcester Bravehearts about his diagnoses with type 1 as an adult. Join the Diabetes Connections Facebook Group! Learn more about Open Omni Learn more about OpenAPS The Nightscout Foundation Sign up for our newsletter here And tell me something good an intern gets called in to see the boss.. for a great reason. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. ----- Show open: what's on this week? Stacey Welcome: Interview with Carson Wedding Interview with Dave Peterson Tell Me Something Good! See you soon - Stacey talk about events (find more here) ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 248Ask the D-Moms: Type 1 Diabetes at School
This week, it's our Ask the D-Moms back to school edition. We talk about tech in school, schedules, 504s and when your kid only has twenty minutes for lunch. Stacey & Moira McCarthy answer your questions. Join the Diabetes Connections Facebook Group! Plus.. Tell me Something Good with a big brother who steps up, and a pageant appearance that makes a difference Pre-order Stacey's Book: The World's Worst Diabetes Mom! This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. Sign up for our newsletter here ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 247When Type 1 Diabetes Leads to Inspiration: Krishna Kaliannan & Catalina Crunch
Krishna Kaliannan is the founder of Catalina Crunch, a low carb cereal company. But that wasn't the path he thought he'd take when he was diagnosed with type 1 in high school. In fact, he was so angry about the diagnosis that for a while, he considered ignoring the whole thing: Join the Diabetes Connections Facebook Group! Krishna made his peace – he tells us how – and he wound up creating a line of low-carb crunchy cereals. He also lives with epilepsy.. and shares that story as well. Sign up for our newsletter here In our Community Connection: Sugar Surfing for your doctor, a new resource from Dr. Stephen Ponder. And in TMSG a T1D teen takes a prize at an invention convention. Congratulations to Morgan LaRochelle! Learn more about her story here. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 246Women and Type 1 Diabetes (Full Panel): Real Talk About Periods, Menopause & More (Bonus Episode)
bonusThis week, Stacey moderates a frank conversation about women's issues and type 1 diabetes. This episode contains the full panel. Join the Diabetes Connections Facebook Group You'll hear about everything from periods to menopause to appearance issues with diabetes gear. The panel includes Elizabeth Forrest, the founder of Touched by Type 1, the conference where this panel took place, lawyer Risa Katz and Nicole Johnson, who is with JDRF now and was Miss America in 1999. All the women live with type 1 diabetes. This is the full panel - an excerpt ran in the episode immediately preceding this one. Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 245Women and Type 1 Diabetes: Real Talk About Periods, Menopause & More
This week, Stacey moderates a frank conversation about women's issues and type 1 diabetes. Join the Diabetes Connections Facebook Group You'll hear about everything from periods to menopause to standing up to your doctors. The panel includes Elizabeth Forrest, the founder of Touched by Type 1, the conference where this panel took place, lawyer Risa Katz and Nicole Johnson, who is with JDRF now and was Miss America in 1999. All the women live with type 1 diabetes. This is an excerpt of the full panel - we'll run the entire thing in our "Extra" bonus episode which will follow this one by a few days. Sign up for our newsletter here In our Community Connection this week, we've been sharing the story of project 50 in 50 – two guys with type 1 tackling the highest peak in all 50 states in 50 days. They did it! And TMSG: a little help from our friends goes a long way. Great story of support at the endo's office. ----- 00:00 Show Open: What's on this week? 1:40 Stacey welcome: Benny start high school and Lea is off to college 5:30 Excerpt from Women of Type 1 Panel from Touched by Type 1 35:40 Community Connection: Project 50 in 50 is complete! 41:30 TMSG: Two teens with type 1 help each other out at the endo & Stacey gets some good news at the JDRF Central Virginia Type One Nation Summit 46:30 Stacey is on the road - JDRF Houston is next, then Children with Diabetes in Falls Church, VA - request her for your event here. pre-order Stacey's book: The Worlds Worst Diabetes Mom here ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 245Omnipod Update from Insulet CEO Shacey Petrovic
Insulet CEO Shacey Petrovic joins us for the first time and talks with Stacey about what's new and what's coming next. Petrovic shares the latest information on Dash, Horizon, Loop and more. Join the Diabetes Connections Facebook Group! Shacey also has a personal connection to type 1 diabetes: her father lives with it. She and Stacey talk about the dynamic of caring for a parent with T1D and how technology is changing that. Vote for us in the Myabetic Diabetes Awards! DiabetesMine Dash Review Omnipod Horizon studies In our Community Connection a little bit of a change from the AADE Conference, they want to change the name Certified Diabetes Educator (CDE) to Diabetes Care and Education Specialists. And in tell me something good.. an honor for a school – thanks to a big gesture from a little kid. Sign up for our newsletter here --- 00:00 Show open: what's on this week? 1:30 Stacey Welcome - back to school! Listen to our interviews about the ADA Safe at School program here 4:00 Interview with Insulet CEO Shacey Petrovic 39:30 Community Connection: AADE Conference update 43:00 TMSG: We made the finals of the Independent Podcast Awards! ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 243T1D Milestones & Responsibility: Ask The D-Moms
Ask The D-Moms is back. This time around we're answering your questions about the "right" ages for diabetes development, wearing extra gear for DIY systems and a discussing about extra praise for diabetes routine stuff. Join the Diabetes Connections Facebook Group! Join Moira McCarthy and Stacey as they answer listener questions and share their own experience raising children with type 1 diabetes. Sign up for our newsletter here In our Community Connection segment, find out about the I Hear You campaign. In Tell Me Something Good, Stacey share listener milestones and gives and update on Project 50 in 50 -- 00:00 What's on this show this week? 1:35 Stacey Welcome: more about Benny at "regular" camp, Stacey talks about the Myabetic Diabetes Awards (vote here) and more. 7:45 Ask the D-Moms 43:00 Community Connection: The "I Hear You" campaign 47:30 Tell Me Something Good! Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 242Wait Wait, Don't Poke Me! The Diabetes Game Show
It's our annual game show edition! Taped on location at the Children with Diabetes, Friends for Life Conference, we have a lot of fun with in-studio contestants and prominent panelists. Join the Diabetes Connections Facebook Group! Our panelists this year are: Dr. Stephen Ponder, founder of Sugar Surfing & a renown pediatric endocrinologist who's lived with type 1 for more than 50 years. Howard Look, founder of Tidepool and the father of a college-aged child with diabetes and Cherise Shockley, founder of DSMA (Diabetes Social Media Advocacy), Blue Fridays, WOCDiabetes and who lives with LADA. Sign up for our newsletter here In our Community Connection this week.. another Caravan to Canada but this one gets the attention of a top tier US presidential candidate And in Tell Me Something Good: A birthday, an international trip and much more! This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 241Researching T1D Prevention - Full Interview with TrialNet's Dr. Michael Haller (Bonus Episode)
bonusFor the first time, researchers have managed to delay the onset of type 1 diabetes. In a breakthrough study, TrialNet was able to delay the onset by two years. Join the Diabetes Connections Facebook Group! Stacey talks to Dr. Michael Haller in-depth about this and other studies. An excerpt of this interview ran in our previous episode. In this episode you'll learn more about how TrialNet works, other promising studies and why it's so difficult to prevent an auto-immune disease. Plus, an update on the funding for TrialNet and why they've changed how they re-screen families and individuals. Sign up for our newsletter here Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android Episode Transcription below Stacey Simms Dr. Haller. Thanks so much for joining me, exciting times. I'm really excited to talk to you today. Dr. Michael Haller My pleasure to be here. Stacey Simms Before we get into the prevention studies that came out and other things that are going on, let's really kind of dial back and start at the beginning. Can you tell me a little bit about what TrialNet is and what you're trying to do? Dr. Michael Haller Sure. TrialNet is an NIH funded consortium of the top type 1 diabetes centers across the US and Canada and even Europe and Australia. And our goal is to try and develop therapies to ultimately prevent and reverse diabetes. And to achieve that goal, we have to identify patients who are either newly diagnosed with type 1 so we can encourage them to participate in research studies, trying new drugs to see if we can protect the remaining beta cells extend their honeymoon phase and hopefully eventually get to reverse their disease. And then the bigger chunk of what that does is actually tries to identify folks who are at high risk for developing type 1 diabetes by screening family members of people who are already affected with type 1 to see they have markers of autoimmunity, and then either follow them to see if they progress to being higher risk, or put them in prevention trials aimed at trying to delay their disease. That's really the main emphasis of TrialNet that it's a huge operation. As you can imagine, trying to identify people who are at risk for type one is not easy, because people don't walk around with a name tag on that says, "Hi, my name is Mike, I'm at risk for type one." We have to draw the blood and identify markers in their blood and we have to talk people through why they would want to do that. So it's an exciting time for all those efforts. But it's certainly a big challenge. I'm going to skip around here a little bit. So forgive me if, as you listen, this sounds out of order, but I have to jump ahead because the news came really recently that we had the first study to show that any drug can delay type 1 diabetes, the diagnosis. Can you talk to us about this? It's called teplizumab. It's a mouthful. Teplizumab is a monoclonal antibody designed to track the parts of the immune system to knock out or kill cells that have a marker on them called CD three. And CD three is sort of like a name tag for these kinds of cells that are going out and attacking the pancreas. Now, unfortunately, it's not so specific that it only attacks those cells that might be targeted at the pancreas. You know, there's some collateral damage that it gets rid of other cells that are part of the immune system, but that's the big challenge in in type one is trying to find drugs that can get rid of the silos that we want to get rid of and not and not the ones we want to keep. But the results of this study are really, truly exciting and paradigm shifting for the field. As you mentioned, this is the first time in the history of type one that we've been able to show that anything can really durably delay or prevent the disease from progressing. So what that study did was take patients like I mentioned, who are high risk for developing type one, so family members of somebody who has type one who had markers in their bloodstream that told us they were going to progress to clinical disease where they need to take insulin in the next several years. And they were treated with this, this drugs immunomodulatory drug teplizumab. And what the data have now shown, the paper was recently published in the New England Journal of Medicine, was that in fact, the drug did delay onset of type one, which means there was actual prevention and some of the patients on average for at least two years, and so while it's certainly not a home run, we can't guarantee that we're preventing the disease forever and the patients who received the active drug versus who received the placebo agent. It's a huge win for the field of type one, it establishes the proof of concept that we really can effectively change the natural history of the disease. And I hope that it accelerates our e

Ep 240Researching T1D Prevention: Dr. Michael Haller and TrialNet
For the first time, researchers have managed to delay the onset of type 1 diabetes. In a breakthrough study, TrialNet was able to delay the onset by two years. Stacey talks to Dr. Michael Haller about that and other studies, about what TrialNet does and what we can do to help further this research. Join the Diabetes Connections Facebook Group! In our Community Connection, this week Project 50 in 50 hits a big roadblock – this was actually a big scare. We'll tell you about it and what's next for these two outdoor adventurers. Sign up for our newsletter here And in Tell Me Something Good, a little bit about meeting some of you in person and the power of saying YES. ----- 1:35 Welcome! What's on the show this week? Stacey explains this interview is an excerpt and the full interview will run in a bonus episode. Check out the new website! www.diabetes-connections.com Learn more about Stacey's book and ask her to come speak at your event! 4:55 Interview with Dr. Michael Haller 34:10 Update from Patrick Mertes of 50 in 50 42:00 TMSG: Stacey shares stories from the Friends for Life conference as well as some terrific listener stories 48:00 Stacey talks about where she's going next: JDRF Central VA in mid-August for their Type One Nation Summit Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 239Richard Vaughn: 74 Years With Type 1 Diabetes
Richard Vaughn was diagnosed in September of 1945, just after he turned six years old. Join the Diabetes Connections Facebook Group! Stacey calls Richard a "treasure to the diabetes community." He is the author of Beating the Odds and keeps a lively presence on social media. Find Richard on Facebook here. This interview first aired in September of 2015. Richard Vaughn Healthline article Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 238Diagnosed at Disney World: The Magic of Community
It was supposed to be a vacation at the happiest place on earth, instead their daughter was diagnosed with type 1 diabetes at Disney world. But that's when some unexpected good things started happening. Join the Diabetes Connections Facebook Group! Jim tells us the story – it was July last year – and explains how Disney and a very cool Disney community - went above and beyond to help this family from Canada when they needed a little magic. Find out about Touring Plans here Find out about the Lines app here Our episode with Len Testa all about using Disney math for type 2 diabetes (and Len's great Disney advice) Sign up for our newsletter here In our Community Connection, Stacey talks about dropping her son off at a month-long sleep away camp. She shares how she needed a lift and got it from her local D-mom friends. And Tell Me Something Good! Scholarships for college students with type 1, a big thank you and a mountain milestone. ----- Show open: What's on this week? 1:30 Welcome - Stacey talks about the Friends for Life Conferences and announces a limited presale of her book! Find out more here (and use promo code "earlybird" until July 23) 7:10 Interview with Jim about his family's experience when their daughter was diagnosed at Disney World 29:10 Community Connection: Stacey shares her experience dropping Benny off at "regular" sleep-away camp. 35:45 TMSG: Beyond Type 1 / Diabetes Scholars awards over 50 scholarships! Learn more here A dad thanks the security guard that tracked down a diabetes bag left behind after a school trip. Follow Project 50 in 50 on their quest to summit the highest spot in all 50 states. ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 237JDRF Children's Congress 2019 / Getting Diabetes Gear to Stick
JDRF's Children's Congress kicks off this week and we're talking to three really incredible delegates. Meet Jack, Hannah, and Kabir who will all tell their stories to legislators. You'll also hear from Stacey's local advocacy chair to find out what Children's Congress is all about and how to apply next time around. Join the Diabetes Connections Facebook Group! Our Community Connection this week is all about getting diabetes gear to stick in the hot sweaty summer. We've got advice from parents of little swimmers and adults who take hot yoga. Scroll to the bottom to see a list of items/products mentioned during this episode. In Tell Me Something Good, we'll talk about a trip of a lifetime as a 16 year old travels to the remote Yukon with a school group. Sign up for our newsletter here This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. ----- Show Open/Tease Stacey Welcome - Find out more about Project 50 in 50 JDRF Children's Congress Greater Western Carolinas Chapter Delegates Community Connection Getting Gear to Stick: TMSG: ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android This list is full of brand name and generics. I've linked to a website when the brand has one. You may also want to try Amazon or ask your medical supply provider. Just as everyone's skin is different, so is our health insurance. It's possible that what works for you may actually be covered. Stranger things have happened. I expect to edit & add to this list in the weeks and months to come. Hope it helps! Sticky Wipes These make the skin a bit tacky in order to give the material you put on top a better hold. Skin Tac wipe or liquid IV Prep wipe Mastisol liquid Stoma Care wipe w/aloe Hollister skin gel ReliaMed wipe Tapes/Patches Stay Put Medical Patches Tegaderm film dressing Opsite Flexifix transparent film Hypafix dressing tape RockaDex Dexcom patches GrifGrips adhesive patch Waterproof Bandaid Wraps/Bands Kinesiology Tape (Includes brand names KT Tape, Rock Tape, Vara Tape) Vet Wrap SleekSleeves Bands4Life Athletic Sleeves Rash Guard/Swim shirt (cut to fit) Misc. EK Tools Tag Punch Classic (Dexcom-sized hole punch) Dexcom & Libre Rash (Public Facebook Group)

Ep 236From Total Denial to Totally Thriving: Meet Rachel Price
Diagnosed with T1D in her 20s, Rachel Price admits she was in denial at first, insisting to her doctors there was nothing wrong. Now, she's an advocate who stays positive but realistic. Rachel has three children and started a business called DiaBeTees selling t-shirts and other products with fun diabetes sayings and catchy slogans. Join the Diabetes Connections Facebook Group! In our Community Connection this week, Dan Haddin is off for Teach for America, but not before creating some fantastic diabetes song parodies. Stacey plays his latest - a funny appeal to Nick Jonas. Click to watch "Diabetic Like You (Sucker Parody)" Sign up for our newsletter here And in Tell Me Something Good, a day camp milestone and a hiker sets out to make his mark. --- 00:00 Tease/Open: What's this week's show about? 1:50 Welcome: Stacey talks about JDRF Children's Congress coming up and talks about CWD Friends for Life later in July as well as her family's plans for the rest of the summer. 5:45 Stacey's interview with Rachel Price 32:40 Community Connection: Hear Dan Haddin's T1D Sucker Parody 36:45 TMSG: Inspired by Isabella: Isa goes to gymnastics day camp, Mike Joyce will hike the Appalachian Trail and Cami is excited (and worried) about her son heading off to college. Learn about Inspired by Isabella Follow Mike's journey on the AT 41:30 Stacey talks about the presentations she's doing at Friends for Life later this month and hints at something new coming up outside the podcast... stay tuned! ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 235All About New Dietary Guidelines: Full Interview with Hope Warshaw, RD, CDE (Bonus Episode)
bonusLow carb, high fat, counting protein for dosing insulin.. when it comes to food and diabetes, there's a lot to keep in mind. It's not as simple as reading a label and measuring a dose. Registered Dietitian and Certified Diabetes Educator Hope Warshaw takes us through the most recent research about eating well with diabetes and talks about food labels. Join the Diabetes Connections Facebook Group! Learn more about the ADA Dietary Guidelines for 2019 This is the full interview with Hope. An excerpt ran in the previous episode. All of our "Extra" interviews like this will be available as transcriptions! To READ the podcast, make sure you're signed up for the newsletter. Each month you'll received an easy to read version of the show! Sign up for the weekly newsletter & get your free transcriptions Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 234All About New Diabetes Diet Guidelines with RD, CDE Hope Warshaw
Low carb, high fat, counting protein for dosing insulin.. when it comes to food and diabetes, there's a lot to keep in mind. It's not as simple as reading a label and measuring a dose. Registered Dietitian and Certified Diabetes Educator Hope Warshaw takes us through the most recent research about eating well with diabetes and talks about food labels. Join the Diabetes Connections Facebook Group! Learn more about the ADA Dietary Guidelines for 2019 In our Community Connection this week how a book about automated insulin delivery is already a big addition to the We Are Not Waiting Community, in more ways than you might think. Find Out About Automated Insulin Delivery, the book by Dana Lewis And Tell Me Something Good: a small act at a Starbucks makes a big difference. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. ----- 00:00 Open/Tease - What's on the show this week? 1:40 Stacey welcome: She shares how Stay Put patches helped keep Benny's Dexcom sensor on through diabetes camp and a beach trip (not a commercial). And get your show transcriptions! Just sign up for the newsletter and each month a new transcript will come right to you. Sign up for our newsletter here 6:00 Interview with Hope Warshaw, RD, CDE 35:30 Community Connection: Automated Insulin Delivery, a new book and project from Dana Lewis 40:30 TMSG: A Starbucks barista realizes his mistake and fixes a drink (no sugar, please!). A listener has the same, low A1C four tests in a row and a diabetes dad shares his son's 24 hour in range triumph (along with a fun dinosaur adventure along the way). 45:30 Stacey shares what happens when she and Benny forget the long-acting dose during their beach vacation. It all worked out fine, but not without some extra work and worry. ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 233Dexcom CEO Kevin Sayer: News From ADA 2019 & More
This week – Dexcom's CEO is back to answer your questions. Kevin Sayer shares lots of news from the recent ADA Scientific Sessions as well as more information about the new G6 transmitter expected later this year. Join the Diabetes Connections Facebook Group! Sayer also shares news about Dexcom's role with current hybrid closed loops, answers your questions about Medicare and updates to Follow and touches on when we might see the G7 and when we'll stop seeing the G4. Learn more about the top research from ADA 2019 In our Community Connection, a new resource to help you find the best pump, CGM and other diabetes tech for you. It's called DiabetesWise, an initiative from the Stanford School of Medicine funded by the Helmsley Charitable Trust. And Tell Me Something Good is all about research that could help the entire diabetes community. Learn about a new prevention study from Trial Net that delayed the onset of T1D for two years. ----- 00:00 Open: What's on the Show This Week? 1:35 Stacey Welcome - Benny's was at camp when Stacey taped this episode (he's back now and had a blast - more on that next week). More about the transcriptions that started going out last week. Sign up for the newsletter to start receiving these monthly "extras." And Texas Roadhouse restaurant is helping JDRF - donating proceeds from their online gift cards. But this ends June 30th so click here to find out more. 5:45 Interview with Dexcom CEO Kevin Sayer 42:45 Community Connection all about DiabetesWise 45:35 TMSG: TrialNet's Teplizumab prevention study Previous interviews with Dexcom: CTO Jake Leach - Feb 2019 focuses on Apple "Hey Siri" update and more on trouble shooting G6 sensors CEO Kevin Sayer - Jan 2019 focuses on G6 rollout, NYE Share/Follow outage and listener questions CEO Kevin Sayer - May 2018 focuses on G6 launch and Dexcom wearable integration CEO Kevin Sayer - March 2018 Dexcom G6 Approved Former CTO Jorge Valdes- June 2017 Apple watch integration discussion, G5 for Android, Dexcom company discussion Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 232Picky Eaters & Summer Swimmers: Ask The D-Moms
Moira McCarthy and Stacey answer your questions about picky eaters, fear of shots and a summer time trips to the pool or beach. They share helpful stories from their own experiences - check the links below for more help and info. Join the Diabetes Connections Facebook Group! Learn about Buzzy and Shot Blocker (pain reduction in shots) MedT's iPort Advance (what Stacey calls an inset for shots) Previous episode on Getting Diabetes Gear to Stick in the Summer In our Community Connection this week… some push back from the DIY community as the FDA targets an off label use issue. Stacey asks, isn't all T1D a bit DIY? FDA Warning RE: DIY devices Read Katie DiSimone's post about the FDA and DIY And in our Tell Me Something Good Segment - sports achievements from young and old as well as a major T1D accomplishment: The 4th person with type 1 diabetes summits Mt Everest! Taylor Adams Summits Mt. Everest with T1D History of T1Ds on Mt Everest -- :00 Show Open -What's on this week? 1:30 Stacey Welcome - Benny's away at Diabetes Camp this week! And more on the ADA Sessions in the FB Group - along with any breaking news that comes from that annual event. Make sure you sign up for the newsletter!! New stuff is coming! Sign Up For the Newsletter Here 5:10 Ask the D-Moms 38:00 Community Connection: DIY & the FDA 42:30 TMSG: Mooresville, NC baseball champs, Senior Games competitor and Taylor Adams becomes the 4th person with T1D to summit Everest ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 231Dads and Diabetes: What T1D Fathers Want You To Know
With Father's Day coming up we're taking a look at Dads and Diabetes. Two T1D Dads: Alan Nolte and Mark Turner share their perspective on raising children with diabetes. Join the Diabetes Connections Facebook Group! Alan and Mark met when their daughters hit it off at diabetes camp last year. The girls became long distance friends and so did their dads. They started a podcast - Dads and Diabetes. They share their stories with Stacey, give us the "guy" perspective and explain what they'd love more D-Moms to keep in mind. In our Community Connection, a quest by two T1D outdoorsmen to summit the highest peak in each state in the US. We'll find out about Project 50 in 50 and how you can get involved. Tell Me Something Good features a 5 year old who's finished second grade! And Stacey shares her daughter's high school graduation. ----- 00:00 Show open and "tease" - what's on the show this week? 2:00 Stacey Welcome - Find out about the 2019 DiabetesMine Patient Voices Scholarship Contest. Attend their November conference and learn about new technology. 4:50 Interview with Mark & Alan of Diabetes Dads 39:00 Stacey talks about diabetes camp (continuing the conversation from the interview) 41:00 Community Connection: Project 50 in 50 45:00 TMSG! A first haircut, a T1D Kindergartener who finished the school year by also finishing first AND second grade and Stacey shares more about her daughter's high school graduation. Listen to "Our T1D Decade" episode here; Stacey mentioned this episode as having a good sibling conversation with Lea. Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 230All About CGMs - Full Interview with CDE Gary Scheiner (Bonus Episode)
Get the most out of your Continuous Glucose Monitor. Certified Diabetes Educator Gary Scheiner joins Stacey to talk about all the CGMs available in the United States. An excerpt of this interview ran in episode 229. We go further in depth on more issues around CGM and discuss more advice. Join the Diabetes Connections Facebook Group! Gary is the founder of Integrated Diabetes Services, the author of many books including, Think Like A Pancreas and was the 2014 AADE CDE of the Year. This is the full interview with Gary. You can find an excerpt in the previous episode. Here's Gary's formula for getting your A1C and beating your endo at the bet he jokes about. Start with your CGM average glucose for 30 days. Multiply by 1.03. Then add 46.7. Then divide by 28.7 to get your A1C. To do the reverse and find out your estimated average glucose, The American Diabetes Association has a handy A1c-to-eAG calculator: https://professional.diabetes.org/diapro/glucose_calc Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 229All About CGMs with CDE Gary Scheiner
Get the most out of your Continuous Glucose Monitor. Certified Diabetes Educator Gary Scheiner joins Stacey to talk about all the CGMs available in the United States. Join the Diabetes Connections Facebook Group! Gary heads up Integrated Diabetes Services, is the author of many books including, Think Like A Pancreas and was the 2014 AADE CDE of the Year. This interview is an excerpt - the full interview with Gary can be found in the bonus episode immediately following. In our Community Connection this week, diabetes camp for grownups – why should the kids have all the fun?! A look at some of the programs available including Camp Nejeda's Survive and Thrive, Beyond Type 1 Slip Streams and TCOYD's One Retreat. Sign up for our newsletter here And in Tell Me Something Good, some diabetes camp memories, more than a generation later. And a big award for a kid who doesn't have type 1 but supports her friends who do. ----- 1:30 Stacey Welcome - she shares her experience filling out diabetes camp forms. A lot has changed since Benny started at camp 8 years ago! 6:55 Interview with Gary Scheiner 36:00 Community Connection: Diabetes Camps for Grownups 40:00 TSMG: Ariel Flur wins a Blumey Award! Her father was featured on the show back in 2016 for riding in the ADA Tour de Cure. And a former camper at Camp Nejeda shares his childhood experience with Stacey. Jim Kutudis even sent us pictures! Check out the FB group for more. Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 228Six Until Me's Kerri Sparling (& Her Mom!) / Will's Way Celebrates 5 Years
For 14 years, Kerri Sparling has shared her story on the very popular blog, SixUntilMe. This month, she published her last post. We take a look back with Kerri and go beyond the blog. We also asked her mom, Debbe, to join us! Debbe shares what she thinks of Kerri's accomplishments and influence and we talk about raising a child with type 1 in a time with very different technology and tools. Join the Diabetes Connections Facebook Group! In our Community Connection – help for people with diabetes who have insurance but still can't afford all of their supplies. We catch up with Diabetes Will's Way as they celebrate 5 years! Sign up for our newsletter here And Tell Me Something Good – meeting your people for the first time. How diabetes conferences are good for the body and the mind. Listeners share their stories and Stacey talks about a recent TCOYD conference. ----- 00:00 Show Open - What's going on this week?! 1:46 Stacey Welcome - She shares a great mother's day present: Benny was Rufus at their local JDRF walk and Lea worked a food truck at the walk. Proud mama moment! Some info about the website - it's still under construction - you can listen to shows there but lots of good new stuff is coming! 5:15 Interview with Kerri Sparling and her mom, Debbe 40:00 Catching up with Lisa Oberndorfer, the founder of Diabetes Will's Way - she's Will's mom - as she marks 5 years of helping people with health insurance who still can't afford what they need. Will was diagnosed at 13 and just graduated high school this year. He was the valedictorian of his class! We also hear from Kathy who received a grant for her daughter's Dexcom CGM. 55:15 Tell me something good: Sarah is 26 just recently diagnosed and met her first T1D people at the EPIC conference in Denver. Stacey talks about the TCOYD conference and a specific session with Dr. William Polonsky of the Behavioral Diabetes Institute Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 227Steel Magnolias is Back in Theaters - A T1D Mom Round Table
bonusSteel Magnolias is getting reissued in a lot of theaters across the country to celebrate 30 years since the movie's release. The movie has become a touchstone and a bit of a hot spot for women, pregnancy and type 1 diabetes. This round table first ran last year as Stacey's local theater was putting on the show; Steele Magnolias was first a play by Robert Harling – based on the true story of his sister's death then the blockbuster movie. Join the Diabetes Connections Facebook Group! Melissa Lee, Kerri Sparling & Kyrra Richards are all moms who live with type 1 joined Stacey for this talk about the movie, their experiences in pregnancy and now with their kids. Melissa is the director of community relations for Bigfoot Biomedical, the mother of two children and was diagnosed with type 1 in elementary school. She blogs at Sweetly Voiced. Kerri is an author, advocate and until recently, she wrote SixUntilMe, the wonderful blog that she wrapped up this month. Kerri was diagnosed at age 7 and has two children. Kyyra created and heads up Myabetic – which makes beautiful fashionable bags with diabetes in mind – she was diagnosed as a adult and when we taped this interview last year she had one baby and another on the way. She now has two young children. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. Last year's episode here (includes some stories about Benny at summer camp - but the Steel Magnolias round table is the same) ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ask The D-Moms / Caravan to Canada #Insulin4All
Dear DMoms is back, answering your questions about when it's time for T1D kids to be more independent, worries about camp and handling judgmental friends. In this monthly segment, Stacey and Moira McCarthy share their experiences to help you through diabetes parenting. Join the Diabetes Connections Facebook Group Moira shares what her medical crisis has taught her about diabetes. Plus, a Caravan to Canada – going across the border to get cheaper insulin. Activists Lija Greenseid and Quinn Nystrom give us a report on their way back home to the US. More info on the Caravan here Newsweek article here Previous interview with Lija about traveling the world with T1D Previous interview with Quinn And in Tell Me Something Good, a graduation that is well earned and a long time coming. A diabetes social media advocate who got her cap and gown. Congratulations to DSMA founder Cherise Shockley! ---- 2:00 Stacey Welcome 5:20 "Dear D-Moms" Stacey & Moira answer your questions 51:30 Community Connection: Caravan to Canada 1:07 Tell Me Something Good: Congratulations to DSMA founder Cherise Shockley on her college graduation! ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 225American Idol's Jackson Gillies Lives with T1D & HS / Benny & Stacey at the Endo
You saw him on American Idol, now Jackson Gillies is using his spotlight to educate not only about type 1 diabetes but about another, more rare condition he's lived with since he was 13. Join the Diabetes Connections Facebook Group! It's a painful skin condition called Hidradenitis Suppurativa or HS. It's not as rare as first thought, but most people with it are too embarassed to seek help. Jackson is trying to change that. Of course, we'll also have some fun talking about American Idol. Check out Jackson's TedX Talk here Here's his American Idol Audition Information on the Auto-Immune Protocol Diet Jackson mentions Plus.. you'll hear from Benny this week – we talk about the changes we.ve made in management and the really great results we've seen. Stacey's son switched to an untethered regimen last fall using long acting Tresiba with their insulin pump and his A1C has come down significantly. More on untethered with Dr. Steve Edelman Previous episode on Benny switching to untethered - Stacey marked his 12 year diaversary with that information and more. And in Tell Me Something Good – family diabetes camp and some volunteer efforts outside the T1D community. ---- 1:30 Stacey welcome - she shares some of Benny's progress 4:00 Interview with Jackson Gillies 30:00 Stacey interviews Benny 44:30 Stacey talks in more detail about the untethered regimen 50:51 TMSG ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 224All About Lows: Full Interview with CDE Shannon Johnson (Bonus Episode)
bonusA Diabetes Connections Extra! We take a deep dive into low blood sugar with a frank talk about what hypoglycemia means, what the dangers are, how to treat and more Join the Diabetes Connections Facebook Group! This is the extended, full version of our conversation about lows. As with all of our "Extra" episodes, an excerpt ran in the episode just before the this one. Look for Extras the last week of each month. Stacey talks to Shannon Johnson, who was diagnosed with LADA in her early 20s. Shannon is also a CDE and a pump and CGM trainer. Low blood sugar basics (JDRF) Low blood sugar info (ADA) Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 223All About Low Blood Sugar with CDE Shannon Johnson / The TCOYD Conference
This week we take a deep dive into low blood sugar. A frank talk about what hypoglycemia means.. what the dangers are, how to treat and more. Join the Diabetes Connections Facebook Group! Stacey talks to Shannon Johnson, a CDE who lives with diabetes herself. Shannon was diagnosed with LADA in hear early 20s and she's now a Certified Diabetes Educator and trains her patients on pumps and CGMs. Plus, we'll find out about the TCOYD conference – the first one for people with diabetes and not just medical professionals. Taking Control of Your Diabetes is marking 25 years. Stacey talks with founder Dr. Steve Edleman who was diagnosed as a teen. And in Tell Me Something Good - huge news from the DIY community. You can now Loop with Omnipod. Find out about the Open Omni project Sign up for our newsletter here ---- 1:45 Stacey welcome - her daughter is graduating high school soon, she's going to two conferences in May: TCOYD in Raleigh and Take Control of Your Diabetes in Orlando. 7:30 Interview with Shannon Johnson, CDE 32:00 Community Connection with Dr. Steve Edelman, TCOYD Founder 46:00 TMSG: Omnipod Loop 52:25 Stacey continues her thoughts about the Hulk and diabetes after seeing Avengers Endgame (very mild spoilers) Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 222Keep Your Insulin Cool Without Refrigeration - The Story Behind Frio
It's hard to believe, but a natural disaster was the spark to bring a popular diabetes device to the US. A Frio is a handy little way to keep your insulin cool. Dan Katzki was diagnosed with type 1 as an adult an in 1989 – during the San Francisco earth quake – he lost power. Join the Diabetes Connections Facebook Group! Not wanting to go through that anxiety again, Dan and his wife Lisa found the Frio product and brought it to the US. How it was invented is another great story. Our Community Connection is all about a virtual conference coming up in May. Find out about the Diabetes Empowerment Summit - the conference you can attend in your pajamas. And Tell Me Something Good includes a huge milestone for a diabetes advocate we've spoke to before. 1000 blog posts for Renza Scibilia who's also marking her 21st year with diabetes. ----- 1:50 Welcome: Stacey shares how the Avengers movie coming out this weeks means a lot to her family. In fact, Marvel has even helped with diabetes. 7:00 Interview with Dan and Lisa Katzki 39:00 Community Connection: The Diabetes Empowerment Summit 42:00 Tell Me Something Good: Renza Scibilia marks 21 years with type 1 and 1000 blog posts! Plus, Julia shares how she's (in her words) "graduated from the breast surgeon" and what that means to her. Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 221Closed Loop Systems With Dr. Bruce Buckingham / Comedian & T1D Advocate Chelcie Rice
This week Stacey talks to renowned researcher, long time pediatric endocrinologist and all around good guy Dr Bruce Buckingham. He decided to become an endo after experiencing diabetes camp early in his residency, more than 50 years ago. Join the Diabetes Connections Facebook Group! Dr. Buckingham tells Stacey he put his first patient on an insulin pump during a clinical trial in 1979! He was principal investigator of the Medtronic MiniMed 670G at Stanford University and he shares his reaction to a recent study that showed some people are struggling with this first commercially available hybrid closed loop. In our Community Connection this week, an important – and if I'm being honest – a bit of an awkward conversation about race. Comedian Chelcie Rice and I talk about how to get more people of color at diabetes events. He's great.. I'm the awkward one. Good info from an event last fall: Diabetics on the Margin (includes links to more information and more people continuing the conversation about people of color living with diabetes. Our Tell Me Something Good this week.. Beyond Type 1 makes it the Webby awards and some great T1D kids speak up about how much diabetes camp means to them. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. ----- 1:50 Stacey Welcome 7:00 Interview with Dr. Bruce Buckingham 41:30 Interview with Chelcie Rice 58:00 Tell Me Something Good Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 220Dear D-Moms: "Good" Numbers, Burnout & More
Ask the D-Moms is back! Moira McCarthy and Stacey answer your questions about explaining diabetes to others without creating fear. They weigh in on offering incentives for "good" numbers and give concrete tips about handling burnout. Join the Diabetes Connections Facebook Group! Sign up for our newsletter here Plus.. Community Connection with a campaign to treat someone to a great meal while helping JDRF and in our Tell Me Something Good a great roundup of milestones and a second American Ninja Warrior contestant with T1D this year!! Find out more about Texas Roadhouse / JDRF Gift Cards Follow Type Zero Ninja on Instagram This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. ----- 2:00 Stacey Welcome 3:30 Stacey talks about the reaction to the recent Ketone episode - specifically the advice around the Keto-diet. 7:00 Moira & Stacey Dear D-Moms Segment 45:30 Community Connection: JDRF & Texas Roadhouse teaming up 47:30 Tell Me Something Good: Christina Martin is Type Zero Ninja - along with Colt Scott she's the second person with T1D who'll be competing on American Ninja Warrior this year. 52:15 Stacey shares how diabetes behaved (or didn't) on their recent trip to the West Coast Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 219Laurian Lane: Mom, Nurse & T1D / "Sweet Genes" Author Susan Sloane
This week, meet Laurian Lane, a labor and delivery nurse now raising three children of her own. Laurian was diagnosed with type one diabetes in 8th grade. When she was older, she began babysitting for Stacey's family! You'll hear Laurian's perspective as a nurse, a sitter and now a mom with type 1. She has great advice for parents (and parents-to-be). In our Community Connection this week, Stacey talks to Susan Sloane, the author of Sweet Genes: Finding a Balance Living with Diabetes. It's their family's story - Susan's two sons were diagnosed with type 1 back in the 1980s and both now work in healthcare. And in our Tell Me Something Good segment.. diabetes comes to your Xbox and it's T1D day at the Georgia State Capitol. Join the Diabetes Connections Facebook Group! ----- 1:30 Stacey Welcome, she talks about Children with Diabetes Friends for Life 4:10 Interview with Laurian Lane 45:30 Community Connection interview with Susan Sloane 1:07:00 Tell Me Something Good: Get your own diabetes-tech avatar for the Xbox and learn more about T1D Day at the Georgia State Capitol. Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 218All About Ketones with CDE Beth Silvers
A Diabetes Connections Extra, all about Ketones. This is the third in our series taking a deep dive into a diabetes management issue. Note: This episode is set up like a Bonus Episode, with none of the regular segments - the interview about Ketones is the entire episode. We're back to our regular set up next week. Ketones are the byproducts of the breakdown of fatty acids. The breakdown of fat for fuel and the creation of ketones is a normal process for everyone. In a person without diabetes, insulin, glucagon, and other hormones prevent ketone levels in the blood from getting too high. But.. with diabetes it's a whole other story. Stacey goes in-depth with Certified Diabetes Educator Beth Silvers. Beth is also a Registered Dietician and was diagnosed with type 1 herself at the age of 5 in 1962. More info about Ketones: Beyond Type 1 American Diabetes Association DiaTribe Join the Diabetes Connections Facebook Group! Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 217Colt Scott: An American Ninja Warrior with T1D
This season of American Ninja Warrior, keep an eye out for Colt Scott! Diagnosed with type 1 as a baby, Colt has been a course tester for ANW for 4 years and just recently got the call that he made it to the show. Colt talks about being a sudden role model - he really just found the diabetes community - and takes us behind the scenes of ANW. In our Community Connection this week an update on what's now called the Thrive Medical Alert Necklace (formerly Glucose Revival) and how you can get yours And Tell Me Something Good! A strong drive to succeed leads to a terrific honor for a teen. Join the Diabetes Connections Facebook Group! ----- 1:30 Stacey welcome - she mentions Friends for Life in Seattle 3:45 Interview with Colt Scott 39:00 Community Connection: Thrive Medical Alert Necklace (listen to our previous episode with inventor Kris Maynard) 41:00 Tell Me Something Good: Sydney is named Camp Sweeney Camper of the Week due to being accepted at the University of North Texas's prestigious College of Music. Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 216Dear D-Moms: Stacey & Moira Answer Your Questions
Our monthly Dear D-Mom segment is back! Moira McCarthy & Stacey take on travel, talking about cure research with our children, and words like "sneaky" and "compliance." Sign up for our newsletter here In our Community Connection – An update on Lilly's announcement about a generic, lower cost insulin. Learn more here And Tell Me Something Good! A baritone gets a big honor. Join the Diabetes Connections Facebook Group! ----- 1:30 Stacey Welcome - Stacey talks about her wedding anniversary and about traveling to Syracuse recently for her college radio station reunion. 5:45 Stacey & Moira answer your parenting questions 49:15 Lilly's lower-cost insulin 54:15 Tell me something good: Baritone Thomas Glass wins First Place at the Rocky Mountain Region of the Metropolitan Opera National Council. Glass was diagnosed with type 1 at the age of five. Here's the article from 2/18 that Stacey mentioned 58:00 Stacey shares a story from Benny for the "podcast people." Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 215All About Diabetes Camp
Everything you need to know about sending your child to camp! This week, we talk about what parents need to think about, what the staff wants you to know and how to make it a great experience for everyone. Dr. Henry Anhalt is a pediatric endocrinologist who works at Camp Nejeda, which has been hosting kid with diabetes for more than 50 years. You'll also hear from Victoria Benyo who started out as a camper and now works at camp. In our Community Connection this week, Stacey talks about camp scholarships and shares some good information about helping pay for diabetes camp ADA Camp Scholarship Info Brightfunds Project Blue November Camp Lists And.. tell me something good! A one year diaversary celebrated with a powerful picture and a ninja gets his big chance. Join the Diabetes Connections Facebook Group! ----- 1:30 Stacey welcome - she talks about her family's experience with camp and talks about some adult D-camp programs. 5:40 Interview with Dr. Henry Anhalt & Victoria Benyo about Diabetes Camp 50:30 Community Connection: Diabetes Camp Scholarship Info 53:00 Tell Me Something Good: we celebrate Noelia's one year diaversary (check out the picture!) and Colt Scott will compete on America Ninja Warriors after testing the courses for 4 years. Stacey shares why Colt has already made a difference to her family. Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 214Hey Siri! G6 Updates with CTO Jake Leach
bonusDexcom released an iOS update on February 27th and we take a deep dive into what's changed and ask about ongoing issues. Stacey talks with Dexcom Chief Technology Officer Jake Leach about the new Hey Siri feature as well as the new ability to add up to ten followers, get a 24 hour in advance sensor warning and direct to Clarity from the G6 app. She also asks about Dexcom's recently announced layoffs, changes to the Follow app, direct to watch capability and G6 sensor issues. (Whew!) Join the Diabetes Connections Facebook Group! Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 213All About Insulin Pumps - Full Interview with Dr. Jonathan Ownby (Bonus Episode)
bonusBack to basics! We've started a new monthly series called "Diabetes Connections Extra" where we take a look at the essential facts of diabetes. This time, we take go in-depth on insulin pumps. Stacey talks to endocrinologist Dr. Jonathan Ownby about what a pump does, how to get the most out of one and what questions to ask. This bonus episode includes the entire, much longer interview you might have heard excerpted in episode 212. Join the Diabetes Connections Facebook Group! Insulin Pump basics 2018 Insulin Pump Comparisons (Integrated Diabetes) Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Ep 212All About Insulin Pumps with Dr. Jonathan Ownby
We take an in-depth look at insulin pumps this week. It's the second part in our series, Diabetes Connections Extra where we do a deep dive into one topic. Stacey talks to endocrinologist Dr. Jonathan Ownby about what a pump does, how to get the most out of one and what questions to ask. Insulin Pump basics In our Community Connection, a high profile look at type 1 and heart disease as TV and radio personality Carson Daly shares his family's story on the Today Show Plus, Tell Me Something Good featuring a new baby and a good liar. Join the Diabetes Connections Facebook Group! ----- 1:30 Stacey Welcome - she talks about interoperability and whether that comparable to Mr. Potato Head. Stacey shares Info about Tandem's new ACE designation by the FDA and more about Open Omni. 7:20 Stacey talks about the history of the insulin pump 9:30 Interview with Dr. Ownby 47:00 Stacey talks about Carson Daly's effort to educate people with type 1 about their risk of heart disease 51:00 Tell Me Something Good: Shelby Daniel's mom shares why her daughter is a good liar! You can see more about Shelby and the Savage Race she completed here. And congrats to Moira McCarthy on the birth on her second granddaughter! 54:00 Stacey asks about emotions when it comes to parenting and diabetes and share some changes she's seen in herself lately. Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android