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Diabetes Connections | Type 1 Diabetes

Diabetes Connections | Type 1 Diabetes

790 episodes — Page 12 of 16

Ep 240Researching T1D Prevention: Dr. Michael Haller and TrialNet

For the first time, researchers have managed to delay the onset of type 1 diabetes. In a breakthrough study, TrialNet was able to delay the onset by two years. Stacey talks to Dr. Michael Haller about that and other studies, about what TrialNet does and what we can do to help further this research. Join the Diabetes Connections Facebook Group! In our Community Connection, this week Project 50 in 50 hits a big roadblock – this was actually a big scare. We'll tell you about it and what's next for these two outdoor adventurers. Sign up for our newsletter here And in Tell Me Something Good, a little bit about meeting some of you in person and the power of saying YES. ----- 1:35 Welcome! What's on the show this week? Stacey explains this interview is an excerpt and the full interview will run in a bonus episode. Check out the new website! www.diabetes-connections.com Learn more about Stacey's book and ask her to come speak at your event! 4:55 Interview with Dr. Michael Haller 34:10 Update from Patrick Mertes of 50 in 50 42:00 TMSG: Stacey shares stories from the Friends for Life conference as well as some terrific listener stories 48:00 Stacey talks about where she's going next: JDRF Central VA in mid-August for their Type One Nation Summit Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Jul 30, 201949 min

Ep 239Richard Vaughn: 74 Years With Type 1 Diabetes

Richard Vaughn was diagnosed in September of 1945, just after he turned six years old. Join the Diabetes Connections Facebook Group! Stacey calls Richard a "treasure to the diabetes community." He is the author of Beating the Odds and keeps a lively presence on social media. Find Richard on Facebook here. This interview first aired in September of 2015. Richard Vaughn Healthline article Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Jul 23, 201935 min

Ep 238Diagnosed at Disney World: The Magic of Community

It was supposed to be a vacation at the happiest place on earth, instead their daughter was diagnosed with type 1 diabetes at Disney world. But that's when some unexpected good things started happening. Join the Diabetes Connections Facebook Group! Jim tells us the story – it was July last year – and explains how Disney and a very cool Disney community - went above and beyond to help this family from Canada when they needed a little magic. Find out about Touring Plans here Find out about the Lines app here Our episode with Len Testa all about using Disney math for type 2 diabetes (and Len's great Disney advice) Sign up for our newsletter here In our Community Connection, Stacey talks about dropping her son off at a month-long sleep away camp. She shares how she needed a lift and got it from her local D-mom friends. And Tell Me Something Good! Scholarships for college students with type 1, a big thank you and a mountain milestone. ----- Show open: What's on this week? 1:30 Welcome - Stacey talks about the Friends for Life Conferences and announces a limited presale of her book! Find out more here (and use promo code "earlybird" until July 23) 7:10 Interview with Jim about his family's experience when their daughter was diagnosed at Disney World 29:10 Community Connection: Stacey shares her experience dropping Benny off at "regular" sleep-away camp. 35:45 TMSG: Beyond Type 1 / Diabetes Scholars awards over 50 scholarships! Learn more here A dad thanks the security guard that tracked down a diabetes bag left behind after a school trip. Follow Project 50 in 50 on their quest to summit the highest spot in all 50 states. ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Jul 16, 201943 min

Ep 237JDRF Children's Congress 2019 / Getting Diabetes Gear to Stick

JDRF's Children's Congress kicks off this week and we're talking to three really incredible delegates. Meet Jack, Hannah, and Kabir who will all tell their stories to legislators. You'll also hear from Stacey's local advocacy chair to find out what Children's Congress is all about and how to apply next time around. Join the Diabetes Connections Facebook Group! Our Community Connection this week is all about getting diabetes gear to stick in the hot sweaty summer. We've got advice from parents of little swimmers and adults who take hot yoga. Scroll to the bottom to see a list of items/products mentioned during this episode. In Tell Me Something Good, we'll talk about a trip of a lifetime as a 16 year old travels to the remote Yukon with a school group. Sign up for our newsletter here This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. ----- Show Open/Tease Stacey Welcome - Find out more about Project 50 in 50 JDRF Children's Congress Greater Western Carolinas Chapter Delegates Community Connection Getting Gear to Stick: TMSG: ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android This list is full of brand name and generics. I've linked to a website when the brand has one. You may also want to try Amazon or ask your medical supply provider. Just as everyone's skin is different, so is our health insurance. It's possible that what works for you may actually be covered. Stranger things have happened. I expect to edit & add to this list in the weeks and months to come. Hope it helps! Sticky Wipes These make the skin a bit tacky in order to give the material you put on top a better hold. Skin Tac wipe or liquid IV Prep wipe Mastisol liquid Stoma Care wipe w/aloe Hollister skin gel ReliaMed wipe Tapes/Patches Stay Put Medical Patches Tegaderm film dressing Opsite Flexifix transparent film Hypafix dressing tape RockaDex Dexcom patches GrifGrips adhesive patch Waterproof Bandaid Wraps/Bands Kinesiology Tape (Includes brand names KT Tape, Rock Tape, Vara Tape) Vet Wrap SleekSleeves Bands4Life Athletic Sleeves Rash Guard/Swim shirt (cut to fit) Misc. EK Tools Tag Punch Classic (Dexcom-sized hole punch) Dexcom & Libre Rash (Public Facebook Group)

Jul 9, 201959 min

Ep 236From Total Denial to Totally Thriving: Meet Rachel Price

Diagnosed with T1D in her 20s, Rachel Price admits she was in denial at first, insisting to her doctors there was nothing wrong. Now, she's an advocate who stays positive but realistic. Rachel has three children and started a business called DiaBeTees selling t-shirts and other products with fun diabetes sayings and catchy slogans. Join the Diabetes Connections Facebook Group! In our Community Connection this week, Dan Haddin is off for Teach for America, but not before creating some fantastic diabetes song parodies. Stacey plays his latest - a funny appeal to Nick Jonas. Click to watch "Diabetic Like You (Sucker Parody)" Sign up for our newsletter here And in Tell Me Something Good, a day camp milestone and a hiker sets out to make his mark. --- 00:00 Tease/Open: What's this week's show about? 1:50 Welcome: Stacey talks about JDRF Children's Congress coming up and talks about CWD Friends for Life later in July as well as her family's plans for the rest of the summer. 5:45 Stacey's interview with Rachel Price 32:40 Community Connection: Hear Dan Haddin's T1D Sucker Parody 36:45 TMSG: Inspired by Isabella: Isa goes to gymnastics day camp, Mike Joyce will hike the Appalachian Trail and Cami is excited (and worried) about her son heading off to college. Learn about Inspired by Isabella Follow Mike's journey on the AT 41:30 Stacey talks about the presentations she's doing at Friends for Life later this month and hints at something new coming up outside the podcast... stay tuned! ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Jul 2, 201943 min

Ep 235All About New Dietary Guidelines: Full Interview with Hope Warshaw, RD, CDE (Bonus Episode)

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Low carb, high fat, counting protein for dosing insulin.. when it comes to food and diabetes, there's a lot to keep in mind. It's not as simple as reading a label and measuring a dose. Registered Dietitian and Certified Diabetes Educator Hope Warshaw takes us through the most recent research about eating well with diabetes and talks about food labels. Join the Diabetes Connections Facebook Group! Learn more about the ADA Dietary Guidelines for 2019 This is the full interview with Hope. An excerpt ran in the previous episode. All of our "Extra" interviews like this will be available as transcriptions! To READ the podcast, make sure you're signed up for the newsletter. Each month you'll received an easy to read version of the show! Sign up for the weekly newsletter & get your free transcriptions Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Jun 27, 201942 min

Ep 234All About New Diabetes Diet Guidelines with RD, CDE Hope Warshaw

Low carb, high fat, counting protein for dosing insulin.. when it comes to food and diabetes, there's a lot to keep in mind. It's not as simple as reading a label and measuring a dose. Registered Dietitian and Certified Diabetes Educator Hope Warshaw takes us through the most recent research about eating well with diabetes and talks about food labels. Join the Diabetes Connections Facebook Group! Learn more about the ADA Dietary Guidelines for 2019 In our Community Connection this week how a book about automated insulin delivery is already a big addition to the We Are Not Waiting Community, in more ways than you might think. Find Out About Automated Insulin Delivery, the book by Dana Lewis And Tell Me Something Good: a small act at a Starbucks makes a big difference. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. ----- 00:00 Open/Tease - What's on the show this week? 1:40 Stacey welcome: She shares how Stay Put patches helped keep Benny's Dexcom sensor on through diabetes camp and a beach trip (not a commercial). And get your show transcriptions! Just sign up for the newsletter and each month a new transcript will come right to you. Sign up for our newsletter here 6:00 Interview with Hope Warshaw, RD, CDE 35:30 Community Connection: Automated Insulin Delivery, a new book and project from Dana Lewis 40:30 TMSG: A Starbucks barista realizes his mistake and fixes a drink (no sugar, please!). A listener has the same, low A1C four tests in a row and a diabetes dad shares his son's 24 hour in range triumph (along with a fun dinosaur adventure along the way). 45:30 Stacey shares what happens when she and Benny forget the long-acting dose during their beach vacation. It all worked out fine, but not without some extra work and worry. ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Jun 25, 201951 min

Ep 233Dexcom CEO Kevin Sayer: News From ADA 2019 & More

This week – Dexcom's CEO is back to answer your questions. Kevin Sayer shares lots of news from the recent ADA Scientific Sessions as well as more information about the new G6 transmitter expected later this year. Join the Diabetes Connections Facebook Group! Sayer also shares news about Dexcom's role with current hybrid closed loops, answers your questions about Medicare and updates to Follow and touches on when we might see the G7 and when we'll stop seeing the G4. Learn more about the top research from ADA 2019 In our Community Connection, a new resource to help you find the best pump, CGM and other diabetes tech for you. It's called DiabetesWise, an initiative from the Stanford School of Medicine funded by the Helmsley Charitable Trust. And Tell Me Something Good is all about research that could help the entire diabetes community. Learn about a new prevention study from Trial Net that delayed the onset of T1D for two years. ----- 00:00 Open: What's on the Show This Week? 1:35 Stacey Welcome - Benny's was at camp when Stacey taped this episode (he's back now and had a blast - more on that next week). More about the transcriptions that started going out last week. Sign up for the newsletter to start receiving these monthly "extras." And Texas Roadhouse restaurant is helping JDRF - donating proceeds from their online gift cards. But this ends June 30th so click here to find out more. 5:45 Interview with Dexcom CEO Kevin Sayer 42:45 Community Connection all about DiabetesWise 45:35 TMSG: TrialNet's Teplizumab prevention study Previous interviews with Dexcom: CTO Jake Leach - Feb 2019 focuses on Apple "Hey Siri" update and more on trouble shooting G6 sensors CEO Kevin Sayer - Jan 2019 focuses on G6 rollout, NYE Share/Follow outage and listener questions CEO Kevin Sayer - May 2018 focuses on G6 launch and Dexcom wearable integration CEO Kevin Sayer - March 2018 Dexcom G6 Approved Former CTO Jorge Valdes- June 2017 Apple watch integration discussion, G5 for Android, Dexcom company discussion Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Jun 18, 201952 min

Ep 232Picky Eaters & Summer Swimmers: Ask The D-Moms

Moira McCarthy and Stacey answer your questions about picky eaters, fear of shots and a summer time trips to the pool or beach. They share helpful stories from their own experiences - check the links below for more help and info. Join the Diabetes Connections Facebook Group! Learn about Buzzy and Shot Blocker (pain reduction in shots) MedT's iPort Advance (what Stacey calls an inset for shots) Previous episode on Getting Diabetes Gear to Stick in the Summer In our Community Connection this week… some push back from the DIY community as the FDA targets an off label use issue. Stacey asks, isn't all T1D a bit DIY? FDA Warning RE: DIY devices Read Katie DiSimone's post about the FDA and DIY And in our Tell Me Something Good Segment - sports achievements from young and old as well as a major T1D accomplishment: The 4th person with type 1 diabetes summits Mt Everest! Taylor Adams Summits Mt. Everest with T1D History of T1Ds on Mt Everest -- :00 Show Open -What's on this week? 1:30 Stacey Welcome - Benny's away at Diabetes Camp this week! And more on the ADA Sessions in the FB Group - along with any breaking news that comes from that annual event. Make sure you sign up for the newsletter!! New stuff is coming! Sign Up For the Newsletter Here 5:10 Ask the D-Moms 38:00 Community Connection: DIY & the FDA 42:30 TMSG: Mooresville, NC baseball champs, Senior Games competitor and Taylor Adams becomes the 4th person with T1D to summit Everest ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Jun 11, 201948 min

Ep 231Dads and Diabetes: What T1D Fathers Want You To Know

With Father's Day coming up we're taking a look at Dads and Diabetes. Two T1D Dads: Alan Nolte and Mark Turner share their perspective on raising children with diabetes. Join the Diabetes Connections Facebook Group! Alan and Mark met when their daughters hit it off at diabetes camp last year. The girls became long distance friends and so did their dads. They started a podcast - Dads and Diabetes. They share their stories with Stacey, give us the "guy" perspective and explain what they'd love more D-Moms to keep in mind. In our Community Connection, a quest by two T1D outdoorsmen to summit the highest peak in each state in the US. We'll find out about Project 50 in 50 and how you can get involved. Tell Me Something Good features a 5 year old who's finished second grade! And Stacey shares her daughter's high school graduation. ----- 00:00 Show open and "tease" - what's on the show this week? 2:00 Stacey Welcome - Find out about the 2019 DiabetesMine Patient Voices Scholarship Contest. Attend their November conference and learn about new technology. 4:50 Interview with Mark & Alan of Diabetes Dads 39:00 Stacey talks about diabetes camp (continuing the conversation from the interview) 41:00 Community Connection: Project 50 in 50 45:00 TMSG! A first haircut, a T1D Kindergartener who finished the school year by also finishing first AND second grade and Stacey shares more about her daughter's high school graduation. Listen to "Our T1D Decade" episode here; Stacey mentioned this episode as having a good sibling conversation with Lea. Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Jun 4, 201951 min

Ep 230All About CGMs - Full Interview with CDE Gary Scheiner (Bonus Episode)

Get the most out of your Continuous Glucose Monitor. Certified Diabetes Educator Gary Scheiner joins Stacey to talk about all the CGMs available in the United States. An excerpt of this interview ran in episode 229. We go further in depth on more issues around CGM and discuss more advice. Join the Diabetes Connections Facebook Group! Gary is the founder of Integrated Diabetes Services, the author of many books including, Think Like A Pancreas and was the 2014 AADE CDE of the Year. This is the full interview with Gary. You can find an excerpt in the previous episode. Here's Gary's formula for getting your A1C and beating your endo at the bet he jokes about. Start with your CGM average glucose for 30 days. Multiply by 1.03. Then add 46.7. Then divide by 28.7 to get your A1C. To do the reverse and find out your estimated average glucose, The American Diabetes Association has a handy A1c-to-eAG calculator: https://professional.diabetes.org/diapro/glucose_calc Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

May 30, 201946 min

Ep 229All About CGMs with CDE Gary Scheiner

Get the most out of your Continuous Glucose Monitor. Certified Diabetes Educator Gary Scheiner joins Stacey to talk about all the CGMs available in the United States. Join the Diabetes Connections Facebook Group! Gary heads up Integrated Diabetes Services, is the author of many books including, Think Like A Pancreas and was the 2014 AADE CDE of the Year. This interview is an excerpt - the full interview with Gary can be found in the bonus episode immediately following. In our Community Connection this week, diabetes camp for grownups – why should the kids have all the fun?! A look at some of the programs available including Camp Nejeda's Survive and Thrive, Beyond Type 1 Slip Streams and TCOYD's One Retreat. Sign up for our newsletter here And in Tell Me Something Good, some diabetes camp memories, more than a generation later. And a big award for a kid who doesn't have type 1 but supports her friends who do. ----- 1:30 Stacey Welcome - she shares her experience filling out diabetes camp forms. A lot has changed since Benny started at camp 8 years ago! 6:55 Interview with Gary Scheiner 36:00 Community Connection: Diabetes Camps for Grownups 40:00 TSMG: Ariel Flur wins a Blumey Award! Her father was featured on the show back in 2016 for riding in the ADA Tour de Cure. And a former camper at Camp Nejeda shares his childhood experience with Stacey. Jim Kutudis even sent us pictures! Check out the FB group for more. Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

May 28, 201947 min

Ep 228Six Until Me's Kerri Sparling (& Her Mom!) / Will's Way Celebrates 5 Years

For 14 years, Kerri Sparling has shared her story on the very popular blog, SixUntilMe. This month, she published her last post. We take a look back with Kerri and go beyond the blog. We also asked her mom, Debbe, to join us! Debbe shares what she thinks of Kerri's accomplishments and influence and we talk about raising a child with type 1 in a time with very different technology and tools. Join the Diabetes Connections Facebook Group! In our Community Connection – help for people with diabetes who have insurance but still can't afford all of their supplies. We catch up with Diabetes Will's Way as they celebrate 5 years! Sign up for our newsletter here And Tell Me Something Good – meeting your people for the first time. How diabetes conferences are good for the body and the mind. Listeners share their stories and Stacey talks about a recent TCOYD conference. ----- 00:00 Show Open - What's going on this week?! 1:46 Stacey Welcome - She shares a great mother's day present: Benny was Rufus at their local JDRF walk and Lea worked a food truck at the walk. Proud mama moment! Some info about the website - it's still under construction - you can listen to shows there but lots of good new stuff is coming! 5:15 Interview with Kerri Sparling and her mom, Debbe 40:00 Catching up with Lisa Oberndorfer, the founder of Diabetes Will's Way - she's Will's mom - as she marks 5 years of helping people with health insurance who still can't afford what they need. Will was diagnosed at 13 and just graduated high school this year. He was the valedictorian of his class! We also hear from Kathy who received a grant for her daughter's Dexcom CGM. 55:15 Tell me something good: Sarah is 26 just recently diagnosed and met her first T1D people at the EPIC conference in Denver. Stacey talks about the TCOYD conference and a specific session with Dr. William Polonsky of the Behavioral Diabetes Institute Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

May 21, 20191h 4m

Ep 227Steel Magnolias is Back in Theaters - A T1D Mom Round Table

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Steel Magnolias is getting reissued in a lot of theaters across the country to celebrate 30 years since the movie's release. The movie has become a touchstone and a bit of a hot spot for women, pregnancy and type 1 diabetes. This round table first ran last year as Stacey's local theater was putting on the show; Steele Magnolias was first a play by Robert Harling – based on the true story of his sister's death then the blockbuster movie. Join the Diabetes Connections Facebook Group! Melissa Lee, Kerri Sparling & Kyrra Richards are all moms who live with type 1 joined Stacey for this talk about the movie, their experiences in pregnancy and now with their kids. Melissa is the director of community relations for Bigfoot Biomedical, the mother of two children and was diagnosed with type 1 in elementary school. She blogs at Sweetly Voiced. Kerri is an author, advocate and until recently, she wrote SixUntilMe, the wonderful blog that she wrapped up this month. Kerri was diagnosed at age 7 and has two children. Kyyra created and heads up Myabetic – which makes beautiful fashionable bags with diabetes in mind – she was diagnosed as a adult and when we taped this interview last year she had one baby and another on the way. She now has two young children. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. Last year's episode here (includes some stories about Benny at summer camp - but the Steel Magnolias round table is the same) ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

May 16, 201953 min

Ask The D-Moms / Caravan to Canada #Insulin4All

Dear DMoms is back, answering your questions about when it's time for T1D kids to be more independent, worries about camp and handling judgmental friends. In this monthly segment, Stacey and Moira McCarthy share their experiences to help you through diabetes parenting. Join the Diabetes Connections Facebook Group Moira shares what her medical crisis has taught her about diabetes. Plus, a Caravan to Canada – going across the border to get cheaper insulin. Activists Lija Greenseid and Quinn Nystrom give us a report on their way back home to the US. More info on the Caravan here Newsweek article here Previous interview with Lija about traveling the world with T1D Previous interview with Quinn And in Tell Me Something Good, a graduation that is well earned and a long time coming. A diabetes social media advocate who got her cap and gown. Congratulations to DSMA founder Cherise Shockley! ---- 2:00 Stacey Welcome 5:20 "Dear D-Moms" Stacey & Moira answer your questions 51:30 Community Connection: Caravan to Canada 1:07 Tell Me Something Good: Congratulations to DSMA founder Cherise Shockley on her college graduation! ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

May 14, 20191h 13m

Ep 225American Idol's Jackson Gillies Lives with T1D & HS / Benny & Stacey at the Endo

You saw him on American Idol, now Jackson Gillies is using his spotlight to educate not only about type 1 diabetes but about another, more rare condition he's lived with since he was 13. Join the Diabetes Connections Facebook Group! It's a painful skin condition called Hidradenitis Suppurativa or HS. It's not as rare as first thought, but most people with it are too embarassed to seek help. Jackson is trying to change that. Of course, we'll also have some fun talking about American Idol. Check out Jackson's TedX Talk here Here's his American Idol Audition Information on the Auto-Immune Protocol Diet Jackson mentions Plus.. you'll hear from Benny this week – we talk about the changes we.ve made in management and the really great results we've seen. Stacey's son switched to an untethered regimen last fall using long acting Tresiba with their insulin pump and his A1C has come down significantly. More on untethered with Dr. Steve Edelman Previous episode on Benny switching to untethered - Stacey marked his 12 year diaversary with that information and more. And in Tell Me Something Good – family diabetes camp and some volunteer efforts outside the T1D community. ---- 1:30 Stacey welcome - she shares some of Benny's progress 4:00 Interview with Jackson Gillies 30:00 Stacey interviews Benny 44:30 Stacey talks in more detail about the untethered regimen 50:51 TMSG ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

May 7, 201955 min

Ep 224All About Lows: Full Interview with CDE Shannon Johnson (Bonus Episode)

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A Diabetes Connections Extra! We take a deep dive into low blood sugar with a frank talk about what hypoglycemia means, what the dangers are, how to treat and more Join the Diabetes Connections Facebook Group! This is the extended, full version of our conversation about lows. As with all of our "Extra" episodes, an excerpt ran in the episode just before the this one. Look for Extras the last week of each month. Stacey talks to Shannon Johnson, who was diagnosed with LADA in her early 20s. Shannon is also a CDE and a pump and CGM trainer. Low blood sugar basics (JDRF) Low blood sugar info (ADA) Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

May 2, 201946 min

Ep 223All About Low Blood Sugar with CDE Shannon Johnson / The TCOYD Conference

This week we take a deep dive into low blood sugar. A frank talk about what hypoglycemia means.. what the dangers are, how to treat and more. Join the Diabetes Connections Facebook Group! Stacey talks to Shannon Johnson, a CDE who lives with diabetes herself. Shannon was diagnosed with LADA in hear early 20s and she's now a Certified Diabetes Educator and trains her patients on pumps and CGMs. Plus, we'll find out about the TCOYD conference – the first one for people with diabetes and not just medical professionals. Taking Control of Your Diabetes is marking 25 years. Stacey talks with founder Dr. Steve Edleman who was diagnosed as a teen. And in Tell Me Something Good - huge news from the DIY community. You can now Loop with Omnipod. Find out about the Open Omni project Sign up for our newsletter here ---- 1:45 Stacey welcome - her daughter is graduating high school soon, she's going to two conferences in May: TCOYD in Raleigh and Take Control of Your Diabetes in Orlando. 7:30 Interview with Shannon Johnson, CDE 32:00 Community Connection with Dr. Steve Edelman, TCOYD Founder 46:00 TMSG: Omnipod Loop 52:25 Stacey continues her thoughts about the Hulk and diabetes after seeing Avengers Endgame (very mild spoilers) Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Apr 30, 201956 min

Ep 222Keep Your Insulin Cool Without Refrigeration - The Story Behind Frio

It's hard to believe, but a natural disaster was the spark to bring a popular diabetes device to the US. A Frio is a handy little way to keep your insulin cool. Dan Katzki was diagnosed with type 1 as an adult an in 1989 – during the San Francisco earth quake – he lost power. Join the Diabetes Connections Facebook Group! Not wanting to go through that anxiety again, Dan and his wife Lisa found the Frio product and brought it to the US. How it was invented is another great story. Our Community Connection is all about a virtual conference coming up in May. Find out about the Diabetes Empowerment Summit - the conference you can attend in your pajamas. And Tell Me Something Good includes a huge milestone for a diabetes advocate we've spoke to before. 1000 blog posts for Renza Scibilia who's also marking her 21st year with diabetes. ----- 1:50 Welcome: Stacey shares how the Avengers movie coming out this weeks means a lot to her family. In fact, Marvel has even helped with diabetes. 7:00 Interview with Dan and Lisa Katzki 39:00 Community Connection: The Diabetes Empowerment Summit 42:00 Tell Me Something Good: Renza Scibilia marks 21 years with type 1 and 1000 blog posts! Plus, Julia shares how she's (in her words) "graduated from the breast surgeon" and what that means to her. Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Apr 23, 201949 min

Ep 221Closed Loop Systems With Dr. Bruce Buckingham / Comedian & T1D Advocate Chelcie Rice

This week Stacey talks to renowned researcher, long time pediatric endocrinologist and all around good guy Dr Bruce Buckingham. He decided to become an endo after experiencing diabetes camp early in his residency, more than 50 years ago. Join the Diabetes Connections Facebook Group! Dr. Buckingham tells Stacey he put his first patient on an insulin pump during a clinical trial in 1979! He was principal investigator of the Medtronic MiniMed 670G at Stanford University and he shares his reaction to a recent study that showed some people are struggling with this first commercially available hybrid closed loop. In our Community Connection this week, an important – and if I'm being honest – a bit of an awkward conversation about race. Comedian Chelcie Rice and I talk about how to get more people of color at diabetes events. He's great.. I'm the awkward one. Good info from an event last fall: Diabetics on the Margin (includes links to more information and more people continuing the conversation about people of color living with diabetes. Our Tell Me Something Good this week.. Beyond Type 1 makes it the Webby awards and some great T1D kids speak up about how much diabetes camp means to them. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. ----- 1:50 Stacey Welcome 7:00 Interview with Dr. Bruce Buckingham 41:30 Interview with Chelcie Rice 58:00 Tell Me Something Good Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Apr 16, 20191h 4m

Ep 220Dear D-Moms: "Good" Numbers, Burnout & More

Ask the D-Moms is back! Moira McCarthy and Stacey answer your questions about explaining diabetes to others without creating fear. They weigh in on offering incentives for "good" numbers and give concrete tips about handling burnout. Join the Diabetes Connections Facebook Group! Sign up for our newsletter here Plus.. Community Connection with a campaign to treat someone to a great meal while helping JDRF and in our Tell Me Something Good a great roundup of milestones and a second American Ninja Warrior contestant with T1D this year!! Find out more about Texas Roadhouse / JDRF Gift Cards Follow Type Zero Ninja on Instagram This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. ----- 2:00 Stacey Welcome 3:30 Stacey talks about the reaction to the recent Ketone episode - specifically the advice around the Keto-diet. 7:00 Moira & Stacey Dear D-Moms Segment 45:30 Community Connection: JDRF & Texas Roadhouse teaming up 47:30 Tell Me Something Good: Christina Martin is Type Zero Ninja - along with Colt Scott she's the second person with T1D who'll be competing on American Ninja Warrior this year. 52:15 Stacey shares how diabetes behaved (or didn't) on their recent trip to the West Coast Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Apr 9, 20191h 1m

Ep 219Laurian Lane: Mom, Nurse & T1D / "Sweet Genes" Author Susan Sloane

This week, meet Laurian Lane, a labor and delivery nurse now raising three children of her own. Laurian was diagnosed with type one diabetes in 8th grade. When she was older, she began babysitting for Stacey's family! You'll hear Laurian's perspective as a nurse, a sitter and now a mom with type 1. She has great advice for parents (and parents-to-be). In our Community Connection this week, Stacey talks to Susan Sloane, the author of Sweet Genes: Finding a Balance Living with Diabetes. It's their family's story - Susan's two sons were diagnosed with type 1 back in the 1980s and both now work in healthcare. And in our Tell Me Something Good segment.. diabetes comes to your Xbox and it's T1D day at the Georgia State Capitol. Join the Diabetes Connections Facebook Group! ----- 1:30 Stacey Welcome, she talks about Children with Diabetes Friends for Life 4:10 Interview with Laurian Lane 45:30 Community Connection interview with Susan Sloane 1:07:00 Tell Me Something Good: Get your own diabetes-tech avatar for the Xbox and learn more about T1D Day at the Georgia State Capitol. Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Apr 2, 20191h 15m

Ep 218All About Ketones with CDE Beth Silvers

A Diabetes Connections Extra, all about Ketones. This is the third in our series taking a deep dive into a diabetes management issue. Note: This episode is set up like a Bonus Episode, with none of the regular segments - the interview about Ketones is the entire episode. We're back to our regular set up next week. Ketones are the byproducts of the breakdown of fatty acids. The breakdown of fat for fuel and the creation of ketones is a normal process for everyone. In a person without diabetes, insulin, glucagon, and other hormones prevent ketone levels in the blood from getting too high. But.. with diabetes it's a whole other story. Stacey goes in-depth with Certified Diabetes Educator Beth Silvers. Beth is also a Registered Dietician and was diagnosed with type 1 herself at the age of 5 in 1962. More info about Ketones: Beyond Type 1 American Diabetes Association DiaTribe Join the Diabetes Connections Facebook Group! Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Mar 26, 201940 min

Ep 217Colt Scott: An American Ninja Warrior with T1D

This season of American Ninja Warrior, keep an eye out for Colt Scott! Diagnosed with type 1 as a baby, Colt has been a course tester for ANW for 4 years and just recently got the call that he made it to the show. Colt talks about being a sudden role model - he really just found the diabetes community - and takes us behind the scenes of ANW. In our Community Connection this week an update on what's now called the Thrive Medical Alert Necklace (formerly Glucose Revival) and how you can get yours And Tell Me Something Good! A strong drive to succeed leads to a terrific honor for a teen. Join the Diabetes Connections Facebook Group! ----- 1:30 Stacey welcome - she mentions Friends for Life in Seattle 3:45 Interview with Colt Scott 39:00 Community Connection: Thrive Medical Alert Necklace (listen to our previous episode with inventor Kris Maynard) 41:00 Tell Me Something Good: Sydney is named Camp Sweeney Camper of the Week due to being accepted at the University of North Texas's prestigious College of Music. Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Mar 19, 201945 min

Ep 216Dear D-Moms: Stacey & Moira Answer Your Questions

Our monthly Dear D-Mom segment is back! Moira McCarthy & Stacey take on travel, talking about cure research with our children, and words like "sneaky" and "compliance." Sign up for our newsletter here In our Community Connection – An update on Lilly's announcement about a generic, lower cost insulin. Learn more here And Tell Me Something Good! A baritone gets a big honor. Join the Diabetes Connections Facebook Group! ----- 1:30 Stacey Welcome - Stacey talks about her wedding anniversary and about traveling to Syracuse recently for her college radio station reunion. 5:45 Stacey & Moira answer your parenting questions 49:15 Lilly's lower-cost insulin 54:15 Tell me something good: Baritone Thomas Glass wins First Place at the Rocky Mountain Region of the Metropolitan Opera National Council. Glass was diagnosed with type 1 at the age of five. Here's the article from 2/18 that Stacey mentioned 58:00 Stacey shares a story from Benny for the "podcast people." Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Mar 12, 201959 min

Ep 215All About Diabetes Camp

Everything you need to know about sending your child to camp! This week, we talk about what parents need to think about, what the staff wants you to know and how to make it a great experience for everyone. Dr. Henry Anhalt is a pediatric endocrinologist who works at Camp Nejeda, which has been hosting kid with diabetes for more than 50 years. You'll also hear from Victoria Benyo who started out as a camper and now works at camp. In our Community Connection this week, Stacey talks about camp scholarships and shares some good information about helping pay for diabetes camp ADA Camp Scholarship Info Brightfunds Project Blue November Camp Lists And.. tell me something good! A one year diaversary celebrated with a powerful picture and a ninja gets his big chance. Join the Diabetes Connections Facebook Group! ----- 1:30 Stacey welcome - she talks about her family's experience with camp and talks about some adult D-camp programs. 5:40 Interview with Dr. Henry Anhalt & Victoria Benyo about Diabetes Camp 50:30 Community Connection: Diabetes Camp Scholarship Info 53:00 Tell Me Something Good: we celebrate Noelia's one year diaversary (check out the picture!) and Colt Scott will compete on America Ninja Warriors after testing the courses for 4 years. Stacey shares why Colt has already made a difference to her family. Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Mar 5, 20191h 1m

Ep 214Hey Siri! G6 Updates with CTO Jake Leach

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Dexcom released an iOS update on February 27th and we take a deep dive into what's changed and ask about ongoing issues. Stacey talks with Dexcom Chief Technology Officer Jake Leach about the new Hey Siri feature as well as the new ability to add up to ten followers, get a 24 hour in advance sensor warning and direct to Clarity from the G6 app. She also asks about Dexcom's recently announced layoffs, changes to the Follow app, direct to watch capability and G6 sensor issues. (Whew!) Join the Diabetes Connections Facebook Group! Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Feb 28, 201930 min

Ep 213All About Insulin Pumps - Full Interview with Dr. Jonathan Ownby (Bonus Episode)

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Back to basics! We've started a new monthly series called "Diabetes Connections Extra" where we take a look at the essential facts of diabetes. This time, we take go in-depth on insulin pumps. Stacey talks to endocrinologist Dr. Jonathan Ownby about what a pump does, how to get the most out of one and what questions to ask. This bonus episode includes the entire, much longer interview you might have heard excerpted in episode 212. Join the Diabetes Connections Facebook Group! Insulin Pump basics 2018 Insulin Pump Comparisons (Integrated Diabetes) Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Feb 28, 20191h 3m

Ep 212All About Insulin Pumps with Dr. Jonathan Ownby

We take an in-depth look at insulin pumps this week. It's the second part in our series, Diabetes Connections Extra where we do a deep dive into one topic. Stacey talks to endocrinologist Dr. Jonathan Ownby about what a pump does, how to get the most out of one and what questions to ask. Insulin Pump basics In our Community Connection, a high profile look at type 1 and heart disease as TV and radio personality Carson Daly shares his family's story on the Today Show Plus, Tell Me Something Good featuring a new baby and a good liar. Join the Diabetes Connections Facebook Group! ----- 1:30 Stacey Welcome - she talks about interoperability and whether that comparable to Mr. Potato Head. Stacey shares Info about Tandem's new ACE designation by the FDA and more about Open Omni. 7:20 Stacey talks about the history of the insulin pump 9:30 Interview with Dr. Ownby 47:00 Stacey talks about Carson Daly's effort to educate people with type 1 about their risk of heart disease 51:00 Tell Me Something Good: Shelby Daniel's mom shares why her daughter is a good liar! You can see more about Shelby and the Savage Race she completed here. And congrats to Moira McCarthy on the birth on her second granddaughter! 54:00 Stacey asks about emotions when it comes to parenting and diabetes and share some changes she's seen in herself lately. Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Feb 26, 201957 min

Ep 2117 Marathons - 7 Days - 7 Continents: Eric Tozer's Story

It's called the World Marathon Challenge: 7 marathons on 7 continents in 7 days. And Eric Tozer did it all with type 1 diabetes: We talk about the path that led Eric to this amazing accomplishment and Stacey asks why anyone would even want to do something like this! We find out about blood sugar management, travel issues and how to stay fueled up through seven marathons. Eric is a co-founder of the Diabetes Sports Project which has great information and inspiration for athletes with T1D. In our Community Connection this week, a fun way to help spread the word on Diabetes Alert Day next month. Find out about Divabetic's partnership with an escape room And Tell Me Something Good! Parents weigh in on their teens. Join the Diabetes Connections Facebook Group! ----- 1:30 Stacey Welcome, she talks about other extreme athletes who've been on the show. Check out those episodes here. 6:00 Interview with Eric Tozer (find out more about JDRF PEAK study here) 44:30 Divabetic's Escape Room for Diabetes Alert Day 47:30 Tell Me Something Good! Stacey is experimenting with a new podcast app: Check out Stacey's Minivan Minutes (not diabetes stuff, just testing out the app for a podcast presentation she's doing for college students) Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Feb 19, 201952 min

Ep 210Ask the D-Moms / #DPodcast Week - Spare a Rose

Advice from the diabetes parents you know and love! Stacey and Moira McCarthy answer your questions in our new monthly segment: Ask the D-Moms. This week, talking to your child without nagging. Is it possible? We also answer questions about discipline, babysitting and letting go when it really scares you. Plus, it's Diabetes Podcast Week so I'll be sharing some other great shows and letting you know how you can help a the Spare a Rose Campaign, which benefits Life for Child. And Tell Me Something Good! A proud husband shares news and a college student takes on diabetes myths in media. Join the Diabetes Connections Facebook Group! This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. ----- 1:40 Stacey welcome: Vote for Diabetes Connections on WFAE's Queen City Podcast contest. Diabetes Daily Grind Real Life Podcast - The Hot-Tub Episode 8:45 Ask the D-Moms: Moira & Stacey answer your questions 42:00 Community Connection: Diabetes Podcast Week to benefit Spare a Rose - Life for a Child 45:30 Tell Me Something Good! Steve Tornambe writes in that he's proud of his wife for bringing her A1C down signfiicnatly (and he's happy his insurance finay covered the Dexcom G5). And we found out that former guest Courtney Gale's research paper/proposal on Hollywood's Perceptions of Diabetes was selected for the Eastern Communication Association Conference. It's titled "Diabetes in the Media: How Hollywood is Causing Miseducation." Listen to our previous episode about College with Courtney and her mom here. Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Feb 12, 201949 min

Ep 209The Grumpy Pumper Talks About Complications / AADE's Crystal Broj

Let's #Talk About Complications. That's a hashtag created by this week's guest who's taking a topic that most of us would rather avoid, and putting it into the spotlight. Chris Aldred is better known as the Grumpy Pumper and he wants us to stop being ashamed to talk about possible complications from diabetes and to stop the blame surrounding this dicey issue. More information on his blog here Find out more about Spare A Rose Find out more about Diabetes Podcast Week Join the Diabetes Connections Facebook Group! Also this week, your diabetes educator is getting some help when it comes to staying current on technology. Stacey talks to AADE's Chief Technology and Innovations officer about a new resource for educators called DANA. And, tell me something good: a big step forward for a 5 year old two years into her T1D journey and a big award for a tween. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider ----- 1:40 Stacey welcome, explains that Chris Aldred's son was just diagnosed with type 1 over this past weekend. She explains Diabetes Podcast week and shares a story about Nick Jonas's wedding reception, not far from where she lives. 8:30 Interview with The Grumpy Pumper 39:20 Interview with Crystal Broj 47:00 Tell Me Something Good: Congratulations to 5-year-old Rose who just checked her blood sugar for the first time! And congrats to 12-year-old Logan Merwin for winning the JDRF Spirit Award at Run Disney! Learn more about Logan, the Elbow Bump Kid Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Feb 5, 201952 min

Ep 208All About Insulin - Full Interview with Dr. Bryce Nelson (Bonus Episode)

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Let's get back to basics. We're starting a new monthly series taking a look at the essential facts of diabetes. This week is insulin and this bonus episode includes the entire, much longer interview you might have heard excerpted in episode 207. Endocrinologist Bryce Nelson takes us through what it does, how it works and the differences among brands. Join the Diabetes Connections Facebook Group! Basics of Insulin Info More Info on Insulin Use Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Jan 31, 20191h 11m

Ep 207All About Insulin with Dr. Bryce Nelson

Let's get back to basics. We're starting a new monthly series taking a look at the essential facts of diabetes. This week: insulin Endocrinologist Bryce Nelson takes us through what it does, how it works and the differences among brands. Dr. Nelson is also our community connection this week. A family member with type 1 guided his career choice and still serves as an inspiration. Join the Diabetes Connections Facebook Group! Plus.. Tell me something good! A middle school student came up with a design to help her grandfather get all the insulin – every drop - out of his pens. We'll tell you about the prize winning "You Get It All" device ----- 1:30 Stacey Welcome: Information about Diabetes Podcast Week Listen to our recent (1/2019) interview with Chris here Listen to our first interview (2017) here 6:00 Interview with Dr. Bryce Nelson Basics of Insulin Info More Info on Insulin Use 42:30 Community Connection: Dr. Nelson explained his uncle's influence on his decision to study endocrinology. Tell Me Something Good: The You Get it All Device Stacey mentions the Children with Diabetes website. Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Jan 29, 201954 min

Ep 206Dexcom's CEO on G6 Launch & G7 Update / Changes at Beyond Type 1

Dexcom CEO Kevin Sayer answers your questions and looks ahead. We talk about issues with the G6 sensors, Medicare, what happened to the Share servers New Year's Eve and he takes lots of questions from listeners. Plus, a look ahead to the smaller G7. That new version will have the transmitter and sensor in one piece. It's due out in late 2020. In our Community Connection, catching up with Beyond Type 1. They've got a new CEO and a new push to help with type 2. Stacey talked to Thom Scher a few weeks back about what makes BT1 tick. Previous interview with Thom Scher And in our Tell Me Something Good segment, Stacey explains that Will's Way – a small but mighty charity – is marking a big milestone. Previous interview with Will's Way Join the Diabetes Connections Facebook Group! ----- 1:40 Stacey welcome - thanks JDRF Greater Western Carolinas for having us at the recent Type One Nation Summit. Benny was Rufus! Proud mom moment for Stacey. 6:00 Interview with Dexcom CEO Kevin Sayer 33:15 Stacey talks about Beyond Type 2 36:30 Interview with Beyond Type 1 CEO Thom Scher 51:00 Tell Me Something Good: Will's Way 53:30 Stacey shares a recent endo visit - lower A1c, almost no lows (thanks to Basal IQ) ---- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Jan 22, 201959 min

Ep 205A T1D Geek Squad? / Bigfoot's Lane Desborough

Did you ever wish you had a Geek Squad on call for diabetes tech issues? Like one of the big box store helpers. David Panzirer with the Helmsley Trust wants to make it happen, starting with CGMs. David explains why he thinks this will work, who will pay for it, and shares his story; two of his three children live with type 1. Join the Diabetes Connections Facebook Group! Plus.. catching up with Bigfoot Biomedical's Lane Desborough about their subscription model. Stacey also has information about Bigfoot's new agreement with Lilly Diabetes. And Tell Me Something Good! Going from DKA to IronMan in just one year?! You'll hear Lauren Dahlin's fantastic story ---- 1:30 Stacey welcome includes a bit about our trip to Israel (more here from Stacey's FB Live) 5:30 Interview with David Panzirer Take action - text the word "CGMChamps" to 555-888 or log on to www.cgmchampions.org 35:25 Stacey talks about Lilly & Bigfoot's new announcement 38:45 Interview with Lane Desborough 55:30 Tell Me Something Good all about Lauren who went from DKA to Ironman 58:30 Stacey just attended the JDRF Greater Western Carolinas Summit - contact us if you'd like her to speak at your event [email protected] ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Jan 15, 201958 min

Ep 204T1D Parenting Advice From Stacey & Moira McCarthy / Katie DiSimone on Tidepool-Loop

Get diabetes parenting advice from two D-Moms you know and trust: Stacey & author/speaker Moira McCarthy. In a brand new monthly segment, they answer your questions about kids and T1D. Moira is an award-winning travel writer, the author of many diabetes books and articles including "raising teens with diabetes," and mom to Lauren, diagnosed 21 years ago at age 6. Join the Diabetes Connections Facebook Group to ask us a question and enter to win Moira's book on teens and T1D. Previous interviews with Moira In our community connection, another diabetes mom talks about finding the DIY community and setting up Loop when her daughter was diagnosed in 2015. Now Katie DiSimone works for Tidepool on their Loop project. Plus.. more Tell Me Something Good – good news from our community.. straight from you! ---- 1:50 Stacey Welcome: New Year's Resolutions Sign up for our newsletter here 4:20 Diabetes parenting advice with Stacey & Moira 41:00 Katie DiSimone talks about Loop 54:45 Tell me something good - a Kindergarten story ---- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Jan 8, 201958 min

Ep 203NBC "The Titan Games" Contestant Chris Ruden Lives With #T1D

The new Dwayne Johnson / NBC show the Titan Games premieres this week and body builder Chris Ruden – a previous guest who lives with type 1 – is one of the contestants. You may have seen him in the commercials, he wears a prosthetic arm. Chris talks about how the mental burden of T1D and the challenges of being born with a shorter left arm and only two fingers led him to the incredible path he's on now. He's got advice for all of us. Listen our to 2017 interview with Chris here Since our interview, Chris traveled to Uganda to help children with type 1 diabetes there. Learn more here. Plus.. what is the T1D Fund? Have you heard about this from JDRF? Stacey talks to Karen Jordan from the Bay Area, CA JDRF Chapter about this newer way of raising money for research. And something new this year: good news straight from you! Want to tell us something good? Email [email protected] and share your story. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. Join the Diabetes Connections Facebook Group! ----- 1:30 Stacey Welcome / Explains social media, where to find the show and new sponsors who are keeping the show free 4:45 Interview with Chris Ruden 38:15 Stacey talks to Karen Jordan from JDRF about the T1D Fund 49:30 Tell Me Something Good! Great story from listener Kathleen Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Jan 1, 201954 min

Ep 202T1D & The Great Christmas Light Fight / The Hangry Woman

The Mure family won 50-thousand dollars in the Great Christmas Light Fight on ABC and gave it to JDRF. Stacey talks to Joe Mure who wasn't sure he wanted to compete at all. He hung up twice on the producers! Joe's son was diagnosed with type 1 at age 5 and we get the story behind the Little North Pole and the network competition. If you'd like to donate to JDRF via The Little North Pole, click here Plus, who is the Hangry Woman? We talk to Mila Buckley about finding support for a younger person with type 2 diabetes. Also this week, Stacey reports that CW Star Austin Basis (Beauty and the Beast and more) has published his comic books, The Kinetix. We talked to him earlier this year when the stories about a superhero teem of kids with disabilities was launched on Kickstarter. Listen to that episode here. And, with this last scheduled show of 2018, a look back at an amazing year. Join the Diabetes Connections Facebook Group! ----- Stacey Welcome: We talk about the Kinetix from Austin Basis Interview with Joe Mure about the Great Christmas Light Fight 26:30 Interview with Mila Buckley - The Hangry Woman 47:30 Looking ahead to 2019 (sneak peek at upcoming shows) Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Dec 18, 201851 min

Ep 201T1D Advocate Quinn Nystrom / MySugr CEO Frank Westermann

Advocate and author Quinn Nystrom was diagnosed with type 1 as a young teenager, just a few years after her little brother developed T1D. Her high school prom date inspired the title of her book, "If I Kiss You Will I Get Diabetes." Quinn shares her story, talks about running for office and tells us what's next. Plus, MySugr CEO Frank Westermann on how his company tries to help make diabetes suck less (and we get Stacey's reaction to that motto). Want Stacey to speak at your event in 2019? Email [email protected] or connect on any of our social channels. ----- 2:00 Stacey welcome 3:00 Stacey shares podcast reviews (one is a question about the Facebook group, link below) Join the Diabetes Connections Facebook Group! 5:00 Scott Johnson interviewed Stacey last week via FB live. You can watch that here or read the transcript! Stacey also shares the story of the first time she met Scott at the Friends for Life conference. 8:20 Interview with Quinn Nystrom 47:30 Interview with Frank Westermann 57:40 Stacey talks about events for next year Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Dec 11, 20181h 0m

Ep 200Our 12 Year Diaversary - Going Untethered & Other Changes

It's Stacey's family's 12 year diaversary. Benny was diagnosed the first week of December in 2006 just before he turned two. This week, Stacey takes a look back and gives an update on how they're managing now. There are significant changes to share; Benny started an untethered routine about two months ago. Learn more about untethered here. Also known as POLI (Pumping On Long Acting Insulin) untethered means you take long acting insulin like Tresiba or Lantus once a day but also use the pump. Stacey explains more. Also this week, one of the biggest changes in the past 12 years has been the rise of smart devices. Stacey talks about Klue, a new app that can sense when you're eating and help you with boluses! Check it out and sign up to Beta here. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. Join the Diabetes Connections Facebook Group! ----- 1:30 Stacey welcome & reads reviews 6:40 Stacey reflects on life in 2006 when Benny was diagnosed 9:40 Diagnosis story 17:00 Big recent changes we've made: switch from Animas to Tslim last year. Got Basal IQ in late August. Started Untethered management in October. Listen back to our Ten Year episode featuring Stacey's whole family 35:15 Interview with Klue's Katelijn Vleugels 46:20 Some programming notes, two more shows left in 2018 - no show the week of Christmas. Book Stacey for events for 2019 (the calendar is already starting to fill up!) email [email protected] Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Dec 4, 201848 min

Ep 199Talking to Teens About T1D with Jill Weissberg-Benchell

We've got a parent's survival guide when it comes to teenagers and type 1 diabetes this week. What to do when your child doesn't want to hear about diabetes anymore and hears your helpful advice as just plain nagging. Jill Weissberg-Benchell has a PhD in psychology and is also a certified diabetes educator. We discuss talking to your teen, listening to your teen and strategies to get through this oh-so-interesting time in their lives. It's not just about attitude. Their bodies are making it really difficult for diabetes. Plus, remember the glucose necklace? It looks sort of like a glow stick necklace but contains sugar for lows on the go? They're going to be ready to go by the end of year and we have a way to get yours for free. Head over to Glucose Revival and sign up for their newsletter (Look for "Get Updates") to get on the list for 1000 free necklaces. Diabetes Connections is not affiliated with Glucose Revival - be aware that you are sharing your email information in exchange for this free offer. Join the Diabetes Connections Facebook Group! ----- 1:45 Stacey Welcome - Stacey reads a recent Apple Podcast review and talks about events for 2019 - email [email protected] to request Stacey as a speaker. 5:20 Interview with Jill Weissberg-Benchell Stacey talks about Raising Teens with Diabetes from Moira McCarthy (link to buy from Amazon) 55:45 Know Better: Glucose Revival Necklace (link back to our original interview with them) Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here

Nov 27, 20181h 0m

Ep 198DIY to FDA: Howard Look Explains Tidepool + Loop

Loop - the DIY app that helps with automated insulin delivery - may become the first do it yourself diabetes solution to go to the FDA. But why did Tidepool decide to take on this challenge? Stacey talks to Tidepool CEO Howard Look about what this decision means, how it's going to work and what it means for those interested in DIY but not willing to use out of warranty pumps or do a lot of programming ourselves. And of course we'll explain what Loop actually is. Read the Medium article Howard mentions here A French company announces they're a step closer to approval of their closed loop – we'll talk about Diabeloop And Pandora gets into the podcasting space. Diabetes Connections is one of the few shows selected for the first launch! Listen to past episodes where we talk to DIY, OpenAPS and We Are Not Waiting advocates and experts. Join the Diabetes Connections Facebook Group! ----- 1:30 Stacey welcome & explains Loop 6:50 Interview with Howard Look 30:30 Diabeloop explained 35:00 Pandora and podcasts Become part of the Pandora's Beta testing as a listener Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Nov 20, 201838 min

Ep 197Novant Health CEO Carl Armato: Hope, Hospitals and 50+ Years with T1D

Carl Armato was diagnosed with type 1 as an infant, he's now the CEO of Novant Health, a large hospital system. But Carl didn't share his diagnosis with many people – partly because of a reaction he got from a coach in middle school – who cut his playing time when he found out. Now very open about his T1D, Carl has written a book, A Future With Hope, that tells the story of his diagnosis, growing up in the days before home meters and how his family rallied around him. Plus, this week marks World Diabetes Day! Ever wondered why the symbol is a blue circle? We'll explain. And Stacey gives a sneak peak of her new project: Club 1921! Join the Diabetes Connections Facebook Group! ----- 1:40 Stacey welcome, talks about recent Facebook issue with podcasts. If you listen via Facebook please consider switching over to a podcast app or the homepage 6:00 Interview with Novant CEO Carl Armato 57:33 The Blue Circle explained ---- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Nov 13, 20181h 3m

Ep 196SU Football Player Andrew Armstrong / JDRF Youth Ambassadors

Andrew Armstrong was diagnosed with type 1 diabetes in high school, when college scouts were already coming around. He had the unique experience of being recruited by someone who knew exactly what he was going through - one of the coaches he met had a daughter with T1D. Andrew is now in his third year at SU and linebacker coach Brian Ward still supports him, as does Athletic Trainer Tim Pike who lives with type 1. Andrew shares his story plus tips and advice for student athletes. We taped this episode in front of JDRF families at Syracuse University. They asked Andrew questions and then Stacey put the kids in front of the microphone. And, this diabetes awareness month, Stacey takes a moment to talk about Project Blue November, a clearinghouse for online diabetes news, events and inspiration. Join the Facebook Group! ----- 1:50 Stacey welcome 5:00 Interview with Andrew Armstrong Interview with JDRF CNY Ambassadors: 32:00 MP 34:30 Bella 37:30 Logan Hockey Fights T1D 40:00 Amie 51:00 Project Blue November ------ Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Nov 5, 201856 min

Ep 195Jackson is A T1D Teen Running for More Than Diabetes

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This bonus episode is about running, community and finding a way to make a difference. It's a great way kick off Diabetes Awareness Month. Stacey worked with Tammy Lowry in her previous job at a radio station. In 2015 Tammy's son Jackson was diagnosed with type 1, just a few weeks before they were both set to run a half marathon to benefit children's cancer research. Jackson's diagnosis took him out of that race, but it led to bigger goals. You can read about that first year here. Read about Tammy & Jackson now. Learn more about the Isabella Santos Foundation Join the Facebook Group! Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Nov 1, 201837 min

Ep 194Jen Block: Behind the Scenes at Bigfoot

Stacey talks to Jen Block from Bigfoot Biomedical with a look at why they plan to be more than a pump company, offering help navigating healthcare and a subscription service. Jen is the VP of Medical and Clinical Affairs. She was diagnosed with type 1 her sophomore year in college, during a cross country road trip. Now a Nurse Practitioner and Certified Diabetes Educator, she shares her story and details about Bigfoot. In our Know Better Segment, one of the very first studies about LADA – sometimes called type 1.5. We'll tell you what researchers learned. And Stacey shares a story about a recent wedding where she made one T1D friend and embarrassed herself trying to track down another. Join the Facebook Group! ----- 1:40 Stacey Welcome 4:50 Interview with Bigfoot's Jen Block 49:30 LADA study 52:30 Stacey doesn't have diabetes radar but she is very embarrassing when she thinks she does.. ------ Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Oct 30, 201859 min

Ep 193Renza Scibilia is Deliberately Non-Compliant / Type 1 Renegade Run

Once called deliberately non-compliant, this week's guest is all about the importance of language when it comes to diabetes. Renza Scibilia has some strong opinions about why words really matter. We'll talk more about her non compliance – it has to do with her Looping, using one of the do it yourself options - and about her diagnosis as a young adult. Plus, information from Diabetes Australia and The Grumpy Pumper In our Community Connections this week, the Type 1 Renegade Run is making noise in the Northeast. The event this past weekend marks the 7th year of this obstacle course and block party. And a closer look at keeping insulin at the right temperature from the pharmacy to your fridge. JDRF, ADA & Helmsley Trust are teaming up to study this issue. Did you see Chris Ruden pop up in the NBC Titan Games promo?! Here's our interview with the T1D body builder from last year. Join the Facebook Group! ----- 1:30 Stacey Welcome - Syracuse and DC round ups, looking ahead to the DiabetesMine Summit 4:00 Interview with Renza Scibilia 39:40 Interview with Renegade Run's Tyson Sunnerberg 52:00 Know Better: insulin study ------ Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Oct 23, 201856 min

Ep 192Eversense: The Implantable CGM

Darrell Greene is one of the first people to try Eversense, the implantable long-term CGM from Senseonics. With Eversense, a doctor places the sensor in the upper arm where it stays for three months. More information here. Darrell explains what the experience is like, how the sensor feels under the skin and shares his story of living with T1D since his early 20s. Darrell is a local news anchor in Memphis, Tennessee and has some fun stories to share about working in the industry. Watch the video of Darrell and his doctor explaining Eversense. Darrell even taped the procedure! Our Know Better segment this week features information about Lilly's faster acting insulin, moving along through the aptly named PRONTO studies. Join the Facebook Group! ----- 1:30 Stacey welcome - information about the podcast on YouTube 5:15 Interview with Darrell Greene 49:00 Information on Lilly's faster insulin - Pronto Studies ------ Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Oct 16, 201854 min

Ep 191JDRF Research: Then & Now with Aaron Kowalski

JDRF's Chief Mission Officer Aaron Kowalski talks about what's new and next in terms of research. He also gives us perspective on what's come before including how JDRF helped fund the CGM and hybrid closed loop landscape that we're all very familiar with now, but that almost didn't happen. Aaron explains what else JDRF is looking at these days, including glucose responsive insulin. He shares his family's story as well - he and his brother both have type 1. Plus.. how do you get rid of needles and Sharps containers? The rules aren't the same in every state or even every city. Put your Zipcode in at this website and find out what's recommended where you live. Join the Diabetes Connections Facebook Group! ----- 1:30 Stacey welcome 4:10 Interview with Aaron Kowalski 52:30 Information about Sharps Containers from SafeNeedleDisposal------ Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android

Oct 9, 201859 min