Shane's Legacy: Fighting Butterfly Disease
Dayton News Today | 2 Min News | The Daily News Now! · The Daily News Now!
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Show Notes
Shane DiGiovanna, a college graduate with epidermolysis bullosa, passed away, leaving behind a legacy of advocacy for families dealing with high care costs. His friendship with Congressman Greg Landsman led to federal legislation named after him, aiming to cover endless wound dressings under Medicare. Shanes story inspires hope for better support, even against brutal odds.
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