Shane's Act: Hope for Epidermolysis Bullosa Families
Dayton News Today | 2 Min News | The Daily News Now! · The Daily News Now!
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Show Notes
Meet Shane DiGiovanna, a Montgomery, Ohio native with epidermolysis bullosa, a rare skin disorder. Despite the exorbitant costs of care, Shane graduated college and advocated for better support. His friendship with U.S. Representative Greg Landsman led to the introduction of the Shane DiGiovanna Act, aiming to fully cover essential bandages under Medicare. This legislation could prevent hospital stays and reduce long-term costs, offering hope for those living with this debilitating condition.
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