We need to raise funds for the critical work of CURE SYNGAP1, join us with #Sprint4SYNGAP #S10e201

Friday, March 6, 2026 - Week 10

 

WHAT DO WE NEED $ FOR?

I talked in Episode 197 #S10e197 about scientific priorities, and in Episode 200 #S10e200 about areas of activity beyond science grants.  All of this is what we need to fund.

 

SPRINT FOR SYNGAP1

Sprint for SYNGAP is coming fast– 49 DAYS. Make a difference. Raise some money.

Get on the map!  Text sprint26 to 71777

https://curesyngap1.org/calendar/sprint4syngap-2026/

 

INAUGURAL SF NIGHT OF IMPACT

Also to raise funds, please join us in SF on May 28th. 83 DAYS. Thanks to the organizational team Justin, Zoe, Ed, Jessica, etc.

cureSYNGAP1.org/SF26 

 

NHS Matter

I talked in episode 198 #S10e198 about the importance of natural history studies. Check out this paper on Zuvenersen from Dravet to understand the long-term impact these studies could have.

https://www.nejm.org/doi/full/10.1056/NEJMoa2506295 Join ProMMiS and Citizen Health.

 

SHOUTOUTS

Rosie Davilla on Univision 

curesyngap1.org/rosie2026 - https://www.univision.com/local/dallas-kuvn/syngap1-el-diagnostico-que-cambio-la-vida-de-rosie-en-texas-video

 

#RareDiseaseDay Talks

Emily Barnes @ Quiver; Paulina and Brian Sheehan @ Third Rock; Mike @ SparkNS; John Hill & Allison CNBC Cures.

 

Beata’s double header SYNGAP1 Stories. Part 1.

https://curesyngap1.org/podcasts/syngap1-stories/beata-tarasiuk/

 

DSCIII

In addition to Colorado Children’s & Stanford we are now in a study at Boston Children’s, Rush and U Alabama aka UAB.  Attending kick off for this at the end of the month.

 

DATES TO TRACK

Scramble for Syngap - 5th annual on October 3 in S. Carolina in 211 DAYS cureSYNGAP1.org/Scramble26 

 

Conference in Denver CO!  271 DAYS.  Sponsorship options in our #Prospectus for industry are available here https://curesyngap1.org/prospectus 
Science Day - cureSYNGAP1.org/SD2025Videos
Family Day - cureSYNGAP1.org/FD2025Videos

See our entire library of webinars & videos on YouTube youtube.com/cureSYNGAP1 

 

BIOSAMPLES & EEGs!

Biorepository needs more samples.  Check out the list and map here https://combinedbrain.org/roadshow/ and contribute both blood & EEGs.  The data and research we do with these samples is invaluable.  Let us know if you are going, email our [email protected]

PUBMED

Pubmed 2026 is at 12, just like last week but am I seeing some amazing manuscripts! https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.2026-2026&sort=date 

 

Two particularly cool papers:

HDAC Inhibitors https://pubmed.ncbi.nlm.nih.gov/41777621/ 

A positive missense causing cognitive resiliencehttps://pubmed.ncbi.nlm.nih.gov/41777621/

 

SOCIAL MATTERS

4,732 LinkedIn.  https://www.linkedin.com/company/curesyngap1

1,535 YouTube.  https://www.youtube.com/@CureSYNGAP1

11.2k Twitter https://twitter.com/cureSYNGAP1

45k Insta https://www.instagram.com/curesyngap1

 

$CAMP stock is at $4.59 on 5 Mar. ‘26 https://www.google.com/finance/beta/quote/CAMP:NASDAQ

 

Like and subscribe to this podcast wherever you listen.  https://curesyngap1.org/podcasts/syngap10/

Episode 201 of #Syngap10 #CureSYNGAP1 #Podcast