Tell me your UnMet Need. CHCO ProMMiS! Gut Paper with Citizen Health. Rx Repurposing - #S10e164
CURE SYNGAP1 PODCAST aka SYNGAP10
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Show Notes
Tuesday, March 11, 2025 - Week 11
CHCO Press Release
https://www.linkedin.com/posts/curesyngap1_syngap1-prommis-research-activity-7305258171642654723-5h2e fill spots, email info@curesyngap1 dot org
SYNGAP1 ProMMiS #SynGAProMMiS
https://curesyngap1.org/resources/studies/syngap1-prommis/
Need your Voice on Unmet Need
Please contact me with stories and permission to share. Mike@
PubMed is at 11 YTD
Willsey Lab on Gut Motility, congratulations to Kate McCluskey
https://pmc.ncbi.nlm.nih.gov/articles/PMC11885846/pdf/41467_2025_Article_57342.pdf
Citizen Health Data in there!
https://www.linkedin.com/posts/citizen-health-inc_citizenhealth-autism-guthealth-activity-7304881198676197376-ng3v
Citizen Health - https://www.citizen.health/partners/srf or http://curesyngap1.org/citizen
Family Conf Video on Drug Repurposing
https://www.youtube.com/watch?v=1S_A1jO28-c - Corey, Lindsay, Zoe and Earl.
Thank you Lindsay.
Unravel BioSciences Discussion/Podcast
Short: https://www.youtube.com/watch?v=xcB8pv2lKRI
Long: https://www.youtube.com/watch?v=CYb0ghaRKm8
Bio-Repository and Roadshow Dates
April 24-25th
Nashville, TN
June 14-15th
Westminster, CO
June 18-21th
St. Louis, MO
June 27-28th
Phoenix, AZ
July 10-12th
Boston, MA
July 18-19th
Denver, CO
July 19-20th
Westminster, CO
July 19-20th
Windsor Locks, CT
Sept/Oct TBD
Philadelphia, PA
Dec 4-5th
Atlanta, GA
Share glowing reviews of SRF on Great Non-Profits!
https://www.cureSYNGAP1.org/GNP
ICD-10’s as discussed in #S10e163 (https://www.youtube.com/watch?v=iDvW7HfzSGA) next meeting cancelled. Time to go for ICD-11s.
https://www.cdc.gov/nchs/icd/icd-10-maintenance/meetings.html
DoD Funding
https://umdf.org/cdmrp_cuts_action/
#MEDICAIDCANTWAIT
https://thearc.org/policy-advocacy/medicaid/medicaidcantwait/
Episode 164 of #Syngap10
#Advocate #PatientAdvocacy #UnmetNeed #SYNGAP1 #SynGAP #SynGAProMMiS