Episode 10
Scales, Grands, Ciitizens, Kayo, iPSC - Episode 10 of #Syngap10 - May 14th, 2021
CURE SYNGAP1 PODCAST aka SYNGAP10
May 14, 202110m 8s
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Show Notes
SYNGAP10 - Ep. 10 - 14 May 2021 - Scales, Grands, Ciitizens, Kayo, iPSC
- Validated Scales
- Congrats to the ORCA Team at Duke https://syngap.fund/orca
- Join Dr. Frazier to learn more about the NET www.syngapresearchfund.org/families/resources/webinars
- Grand parents article https://syngap.fund/grand
- Thank you Barbara for this article https://www.syngapresearchfund.org/post/loving-a-grandchild-with-syngap1
- Join the Group there is a link in the article - Peer connection is so key
- Ciitizen
- US sign ups continue! Every patient matters/. https://www.ciitizen.com/syngap1/
- International is open! Same link, but you must collect and upload.
- Ashley Evans, the co-founder of SRF, gave an interview with Kayo - https://Syngap.fund/Kayo
- IPSCs - We are in the home stretch of accelerating treatments via making iPSCs available