Our kids will live long lives and do beautiful things, let’s make sure we help them as much as possible.

Episode 35 of #Syngap10 - November 12th, 2021  

HOLIDAY GIFTS - GET SRF #MERCH

5 days left to order Hoodies, T-shirts, other gear: 

- https://syngap.fund/LHC or https://syngap.fund/BKC
- Get your holiday cards at Minted.com and use code FUNDRAISESYNGAP 

 

FOUR STUDIES are enrolling now/soon:

- Dr. Andrade - Watch the video and let us know if you have an adult who would like to participate. https://youtu.be/WyhRDePe0Jc 

- Dr. Frazier - Reach out to [email protected] to participate.  Here is the webinar. https://www.syngapresearchfund.org/webinars/improving-the-assessment-of-syngap1-by-creating-online-measures-for-parents-and-patients 

- ORCA - Once we get the greenlight from FDA we will start recruiting.  Here is a link with more info: https://www.syngapresearchfund.org/post/combinedbrain-duke-university-team-up-to-receive-a-prestigious-fda-grant 

- We have less than 20 spots left in this cohort of Ciitizen, sign up in the next 10 days: https://Ciitizen.com/SYNGAP1 

 

CRYPTO

- Jack Shi interview on 

https://twitter.com/cureSYNGAP1/status/1459165110862168066?s=20

https://www.linkedin.com/feed/update/urn:li:activity:6864944054384279552

https://www.facebook.com/cureSYNGAP1/posts/910882546460875

- Donate Crypto to SRF  https://syngap.fund/block

 

HELP US RAISE FUNDS FOR SYNGAP

- Facebook Fundraisers: http://syngap.fund/FBFun

- Giving Tuesday Fundraiser: https://syngap.fund/gt21

 

- What is SYNGAP1?  https://www.syngapresearchfund.org/home/what-is-syngap1

- Sign up for this 10 minute #podcast #SYNGAP10 here https://syngap.fund/10

 

#NFTs #crypto #unlockdefi #Bonfire #minted #Syngap #epilepsy #autism #intellectualdisability #id #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #Genetics