PLAY PODCASTS
Funding Priorities.  Biorepository.  Genetic Testing. How to move for a clinical trail! #S10e197 Monday, February 2, 2026 - Week 6
Episode 198

Funding Priorities. Biorepository. Genetic Testing. How to move for a clinical trail! #S10e197 Monday, February 2, 2026 - Week 6

CURE SYNGAP1 PODCAST aka SYNGAP10

February 3, 20269m 55s

Audio is streamed directly from the publisher (mcdn.podbean.com) as published in their RSS feed. Play Podcasts does not host this file. Rights-holders can request removal through the copyright & takedown page.

Show Notes

All US Families, please take the time to fill out the ProMMiS Survey. It takes 5 minutes. It's super important. Even if you haven't been there, we need your feedback.

English: https://curesyngap1.org/SurveyProMMiS  

Spanish: https://curesyngap1.org/encuestaProMMiS

 

Our funding priorities for 2026 are Genetics, Behaviors & Isoforms. https://www.linkedin.com/posts/graglia_syngap1-curesyngap1-grants-activity-7421952845693788160-EHeK 

 

Pubmed 2026 is at 6!

https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.2026-2026&sort=date

 

Coolest paper on Pubmed… GC rich areas were missed, so not only do we need to push for testing, but also REtesting.

https://pubmed.ncbi.nlm.nih.gov/41577710/

 

Bravo to CURE SYNGAP1 Poland (please send me a shirt) & thank you to CAMP4

Event: https://www.linkedin.com/posts/curesyngap1_it-was-a-day-to-remembera-perfect-combination-activity-7422379922578587648-wNBP

 

Don’t move to or from US/EU/LatAm etc.  This question keeps coming.  Please stay where you are and advocate like crazy.  Set up CURE SYNGAP1 [Your location]

 

Biorepository needs more samples.  Check out the list and map here https://docs.google.com/presentation/d/1IjaHILXj7AlBDlbTJgvYrkBS_0bnI8VCnTIiPXJ7JGM/edit?usp=sharing and contribute blood.  The data and research we do with these samples is invaluable.

 

Annual update to Champions of Hope! https://curesyngap1.org/champions-of-hope/ 

 

May 28, San Francisco, CA: cureSYNGAP1.org/SF26 

 

SOCIAL MATTERS

4,661 LinkedIn.  https://www.linkedin.com/company/curesyngap1/ 

1,520 YouTube.  https://www.youtube.com/@CureSYNGAP1   

11.2k Twitter https://twitter.com/cureSYNGAP1 

45k Insta https://www.instagram.com/curesyngap1/ 

 

$CAMP stock is at $3.83 on 27 Jan. ‘26 https://www.google.com/finance/beta/quote/CAMP:NASDAQ

 

Like and subscribe to this podcast wherever you listen.  https://curesyngap1.org/podcasts/syngap10/

Episode 197 of #Syngap10 #CureSYNGAP1 #Podcast