Community and #SYNGAPlove - Episode 14 of #Syngap10 - June 11, 2021
CURE SYNGAP1 PODCAST aka SYNGAP10
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Show Notes
- We are seeing some great photos! https://Syngap.fund/Love which is https://www.syngapresearchfund.org/post/share-your-love-for-someone-with-syngap1-for-splash4syngap #SyngapLove
COMMUNITY
- I don’t want the questions. It’s hard to go out in public, our kids are so damn cute.
- Connecting on a gene/geno pheno. https://www.syngapresearchfund.org/post/understanding-your-genetic-report-with-syngap1-a-rare-disease
BLOGS
- Check out life expectancy blog. https://www.syngapresearchfund.org/post/whats-the-life-expectancy-of-someone-with-syngap1
- SRF Equine Therapy Articles, http://syngap.fund/horse which is https://www.syngapresearchfund.org/post/hippotherapy-equine-therapy-syngap1
UPENN
- Thx Dr. Heller for your impressive progress report!
- Speaking of UPenn! #MDBR21SRF tomorrow! Thanks Aaron Harding and support the team at Syngap.Fund/GIVE
- Coba Press Release https://syngap.fund/coba2
- #Rarecast with Nasha Fitter of Ciitizen. https://syngap.fund/RCNF
- Sign up for Ciitizen: Ciitizen.com/SYNGAP1