A patient dosed, new site, audited financials, conference reviews, EOY giving, two studies to join! - #S10e126
CURE SYNGAP1 PODCAST aka SYNGAP10
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Show Notes
Today a SYNGAP1 patient was dosed with 4PB. Thank you Dr. Grinspan!
Have you seen our new site? Thx Ed, Dan and team! www.cureSYNGAP1.org
Finances, we have two years of audited financials on https://curesyngap1.org/finances/
There are two reviews of the SYNGAP1 Conference and one of AES you need to read
S1 https://curesyngap1.org/blog/syngap1-conference-2023-science-day-a-summary/
S1 https://www.draccon.com/dracaena-report/syngap2023
AES https://www.draccon.com/dracaena-report/aes2023
End of year Giving is afoot!
Give up your cup https://givebutter.com/Iuwfzd
Albrecht Match https://givebutter.com/uNxleH aka Syngap.Fund/Harper
General Giving https://curesyngap1.org/donate/
Sign up for Adult Study led by Dr. Andrade, if you loved one is 17 or over please email [email protected]
Sign up for NET Study, email [email protected] check out #S10e122 and the #SRFFrazier Release if you are not up to date!
https://www.eurekalert.org/news-releases/1006753
Give all three of our podcasts 5 stars everywhere.
https://podcasts.apple.com/us/channel/syngap1-podcasts-by-srf/id6464522917
This is a podcast subscribe!
https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1/id1560389818
Episode 126 of #Syngap10 - December 12, 2023
#epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat