Healthcare Advocacy: Navigating Policy, Misinformation, and the Power of Storytelling with Alison Betty of alignco
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Show Notes
In this powerful episode of Boundless B, host Kai M Sorensen speaks with Alison Betty, longtime public policy expert and co-founder of alignco, about the critical role of advocacy in healthcare—particularly for individuals impacted by Hemophilia B.
They explore how healthcare policy is shaped, why misinformation is a growing challenge for patients and providers alike, and how storytelling can cut through the noise to drive real change. Alison stresses that everyone has a story worth telling, and that even small efforts—like calling your representatives—can make a big difference.
Whether you're navigating Medicare, Medicaid, the ACA or private insurance, this episode offers guidance, inspiration, and a call to action for anyone ready to engage in meaningful patient advocacy and community engagement.
This episode is made in partnership with Balancing Life’s Issues.
Additional Resources:
- alignco || Alison Betty
- Call your Rep, U.S. Capitol Switchboard: 202-224-3121
- https://www.protectcoverage.org/members
- The Coalition for Hemophilia B
- Balancing Life's Issues
Key Takeaways:
- Advocacy is about using your voice—for yourself and others.
- Everyone’s story matters, even if it’s not dramatic.
- Misinformation in healthcare creates confusion; seek out multiple sources.
- Policy changes often happen in small, impactful steps.
- Personal stories create emotional connections that influence decision-makers.
- Effective advocacy is a dialogue, not a monologue.
- Staying informed on Medicare and Medicaid changes is critical.
- Community support amplifies your voice and strengthens the message.