Season 1 · Episode 27
TJ and Tremmel on Living with Cystic Fibrosis
Beyond the Disability · Janice Brown
June 16, 202249m 32s
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Show Notes
In today's Episode, Janice Brown talks with an African American family with two sons who were born with Cystic Fibrosis. They share the story of learning their children had CF, and what life is like in a family with CF.
Conversation Highlights:
{01:32} Meet our guest
{04:25} The journey with Cystic Fibrosis
{15:18} Raising children with Cystic Fibrosis
{35:15} The six Ps. Pleasure – Purpose – Pride – Product – Practice - A Pearl of wisdom
Resources:
The Judkins CF Foundation link: https://fightcf.cff.org/site/TR;jsessionid=00000000.app202a?px=4935803&pg=personal&fr_id=9008&s_src=boundlessfundraising&s_subsrc=bfAphSmsPfMsg&NONCE_TOKEN=309693393B36D1780807CFBEEB062F5F TJ's book: https://www.amazon.com/Boy-CF-Story-Acceptance-Endurance/dp/163308518Xbetterhealthandrehab.com