Living with a rare condition, Fibrous Dysplasia
Beyond the Disability · Janice Brown
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Show Notes
In today's Episode, Janice Brown talks to Chelsey. Chelsey was diagnosed with the very rare disease of Fibrous Dysplasia. She talks about learning she had the disease and how it has impacted her life. I hope you enjoy this conversation.
Conversation Highlights:
{00:27} Intro of guest
{01:47} What is Fibrous Dysplasia
{02:35} Being diagnosed with Fibrous Dysplasia
{05:00} Learning the rarity of FD
{07:11} Treatment options
{13:00} Dealing with depression
{17:00} Things that changed, leaning on support systems
{24:00} Future goals
{26:00} The 3 Ps. Perl of wisdom, Product, Practice
Resources:
betterhealthandrehab.com
Fibrous Dysplasia Overview | NIH Osteoporosis and Related Bone Diseases National Resource Center