Patient Voices: Reflections from Rheum Champions
In this special episode of our podcast, we bring together a group of inspiring advocates known as Rheum Champions, each living with rheumatic diseases, to share their experiences and insights. These advocates participated in the 2025 Rheumatology Investigators Meeting, organized by the Rheumatology Research Foundation.
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Show Notes
They discuss how they became Rheum Champions, their personal journeys with conditions like rheumatoid arthritis, lupus, PCOS, and more, and the importance of community and support. The episode also highlights significant takeaways from the meeting, including research updates, the passion of the researchers, and the heartwarming sense of community.
This podcast serves as a powerful reminder of how important it is to integrate the patient voice into rheumatology research.
*This episode was originally recorded for the My Spoonie Sisters podcast.
Episode at a glance:
- 00:00 Welcome to the Rheum Champions Tell All
- 01:59 Introducing the Rheum Champions
- 03:55 Sharing Our Stories: The Journey to Advocacy
- 07:13 The Impact of Community and Support
- 10:55 Becoming a Rheum Champion
- 16:09 Highlights from the 2025 Investigators Meeting
- 24:52 Final Thoughts and How to Get Involved
Medical disclaimer:
All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
Episode Sponsors
Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
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